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Eldest turned down for PIP at renewal

5 replies

elliejjtiny · 16/01/2026 14:05

We just found out today. He was getting low rate care dla from age 9 to 16, then standard rate for both parts of PIP from age 16 to 19. Now they said he scores 0 points because he has a part time job and goes to university.

He has significant amounts of support at university and i'm worried he will lose that. He loves university and he is studying his special interest.

He has autism, without any learning disabilities, diagnosed aged 9.

OP posts:
undone561 · 16/01/2026 14:53

Does his uni support fall under DSA? That shouldn't be affected as that is based on individual study needs. I wouldn't have thought that anything at uni would be dependent on him receiving PIP.

elliejjtiny · 16/01/2026 15:16

Yes, the support at university falls under DSA. I thought he qualified for DSA because he was getting PIP but I will check the criteria. About half the help he gets is from DSA, the other half is me and his Dad. I don't think he would have managed to go to university if he'd been going 25 years ago when I went. Video calls, instant money transferring, amazon prime and no limits on the internet have been essential.

OP posts:
elliejjtiny · 17/01/2026 17:36

Just found out the DSA will remain thank goodness as I can use his autism diagnosis as proof that he needs it. He won't be able to get a new disabled railcard when his runs out in October but he can get a different railcard, either student or young person one, I can't remember.

Is it worth appealing the decision do you think? I feel like I let him down during the telephone assessment as I was struggling over the Christmas holidays with my younger son not sleeping and I don't think I went into enough detail, although I went into a lot of detail on the form.

OP posts:
2x4greenbrick · 18/01/2026 10:32

DSA isn’t based on receiving PIP.

If you want to request a mandatory reconsideration, DS (or you if you are appointee) can. You should do this in writing. You can request a statement of reasons. Have you requested a copy of the assessor’s report? You can work and attend university and still receive PIP. You need to explain DS’s difficulties in relation to the activities assessed and reference your evidence for this. Challenge anything that is incorrect in the assessor’s report &/or the statement of reasons and again reference the evidence. If the MR isn’t successful DS (or you if you are appointee) can appeal if you want to.

Fairydusthello · 18/01/2026 10:33

Definitely appeal. Do you have any copies of recent reports/letters you can send which evidence DSA support.

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