Also posted in children's health for traffic
Just after some advice and/or shared experiences really.
DS2 is 13, was diagnosed with epilepsy about 18 months ago. Has been on various medications, all of which seemed to work initially but then stop - maybe as he outgrows them? Was put onto Lamictal in addition to Levetiracetam in November. Horrendous settling in period with that including daily vomiting for a month. Since Christmas Day! he has been fine & we have seen only a handful of absences or drops - tonic clonics stopped completely which was the aim, the consultant said.
He has put on about 4kg of weight in that month, which may be of relevance?
In the last week, he has had a couple of episodes where he has had multiple absences in one spell. This is not something we have seen before in him.
On Saturday, he had maybe 10 in half an hour or so, coming back between them, but then going straight into another. DH was worried this was Status Epillecticus so rang 111, who of course advised to take him to A&E. My view was that it would have been sufficient to let his epilepsy nurse know (she works Monday-Friday) & just keep a close eye on him, as he had no signs of Status Epillepticus that I could see online & 111 will always advise A&E with an epileptic child. Hospital did all usual observations & found absolutely no cause for concern, just wanted to update his consultant.
He had similar at school today, so because they are aware he went to A&E at the weekend, they have sent him home. He is now home & 100% & missing lessons, which he finds difficult anyway. So I feel that we are back to a state of him not receiving a sufficient education because school & DH are panicking too much. Or am I not panicking enough?
Anyway, just wondering if anybody has similar experiences they can share?