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SN teens and young adults

Here are some suggested organisations that offer expert advice on SN.

Awarded wrong amount of child disability payment?

3 replies

empatheticpretzel · 14/07/2023 09:44

By the criteria she should be getting HRC and HRM. She gets middle rate care and lower rate mobility. I have already submitted for a reconsideration and haven't included every example below of her needs but is there anything obvious about this that would explain their decision

middle rate care:

  • Need to pick out sensible and weather appropriate clothes and footwear as they are unable to make sensible decisions themselves (should be more than capable at her age)
  • Needs help to manage money to prevent it from being wasted as a result of impulsivity and inability to understand consequences or how much spending is adding up to
  • Watches shows such as peppa pig or other cartoons intended for much younger children and plays with soft toys.
  • Has interests in activities intended for much younger children
  • Needs to make sure they don't take childish toys or items out with them (that they insist on bringing) which would them visibly vulnerable.
  • Has given personal information to strangers online
  • Could be outing but whilst left alone for 10 minutes engrossed on an iPad our home was broken into and a neighbour happened to
be in and called the police on her behalf by which point the offending person had already approached her (she wasn't physically harmed but this this is when we learned she didn't have the capacity to know she should have called the police and it will never happen again)
  • up with her multiple times a night and needs to be prevented from acting out dangerous thoughts or impulses due to inability to understand consequences and impulsivity

awarded lower rate mobility:

  • Refuses to walk, sits down multiple times. 90% of the time refuses to go outside in the first place. They rarely go out because
of this (specified how much, less than once a week). When they do, due to sensory issues and social anxiety, it leads to hyperventilating, self harm stims and public meltdowns including shouting and kicking on the ground
  • problems with paying attention which impacts the ability to walk safely. They have bolted out into traffic and need to be restrained from doing this too.
  • poor spatial and self awareness leading to accidents and falls
can't listen to instructions so will not listen to being told to look where they're going or not step out into the road. Needs to be physically restrained from doing this.
OP posts:
Relaxinghammock · 14/07/2023 16:11

Here is Contact’s booklet on claiming HRM for those with autism, and this document has the flowcharts for the SMI and VUW criteria. Both are aimed at DLA, but the Scottish CDP is similar, so will still help.

empatheticpretzel · 14/07/2023 16:17

Relaxinghammock · 14/07/2023 16:11

Here is Contact’s booklet on claiming HRM for those with autism, and this document has the flowcharts for the SMI and VUW criteria. Both are aimed at DLA, but the Scottish CDP is similar, so will still help.

Thanks Smile I'll look now

OP posts:
Appleo1 · 25/11/2023 09:15

@empatheticpretzel can I ask how you got on. I'm in the same boat

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