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Encopresis and pda teen

5 replies

theskyispurple · 01/08/2022 19:52

Please send me ideas... chronic constipation and soiling forever, age 14 now, autistic with pda and adhd.
Reallly
Long history - current situation is that taking medications is intolerable and consequently is now very backed up, I suspect impacted.
Last clear out about 5 weeks ago. Since the. Bno until 10
Days ago. In prep for going on hol with his dad abroad we tried 4 days of micralax enemas with no effect at all. I ended up giving him a big dose of senna fb sodium
Picosulfate with terrible effect - in that he was cramping, in pain and vomiting. Thought things were starting to move so he went to Spain with his dad.
A week has past- he says that despite having some liquid poo he's not passed a big lump of poo.
I think it's just overflow.
He's refusing to take any
Meds or use the enema now.
He gets back on sat and I've got 6 days to disimpact him before our planned holiday.
Any ideas that don't involve hospitalisation? And if he was hospitalised what would they do/ give?

OP posts:
PrettyUpMyPorch · 01/08/2022 23:59

Hi! There are two Facebook groups which might be of help to you if you're not already a member. The first is Movicol Mummies which is a predominantly UK group.

The second is called Help!!!! My Child has Encopresis, which is more global, but predominantly US focused.

You will get tonnes of advice if you post on those groups.

You could also get in touch with ERIC which is the UK bowel and bladder charity and ask for their advice.

My two cents... the quickest way to disimpact is probably to use Picolax (which is on prescription) over two days but may cause vomiting if he's already quite backed up as it contains lots of stimulant laxatives.

Therefore probably best to start pushing Movicol... I would probably do 4 adult sachets the first day and then go straight to 8 every day thereafter and then also give 30ml Senokot Syrup each evening from Day 3. I am not a doctor though, just a very experienced parent of children with bowel problems!!

If he goes to hospital they would give KLEANPREP and he would have to drink A LOT of it... if he didn't keep up with the schedule they would give it by nasogastric tube. And I think they would give very large doses of senna etc too.

Wishing you lots of luck!

PrettyUpMyPorch · 02/08/2022 00:00

Meant to also say, if he's refusing meds, Movicol Mummies has lots of creative ways to hide Movicol... eg in jelly

theskyispurple · 02/08/2022 06:23

Thanks for replying @PrettyUpMyPorch
We don't use movicol due to the safety concerns surrounding it's ingredients.

Literally no chance ever of him drinking it anyway in the quantities needed!

OP posts:
PrettyUpMyPorch · 02/08/2022 09:46

Ah ok, are you using magnesium as a stool softener instead, or no softener?

Are you on the FB group Parents Against Miralax ? They may be a good source of advice if you don't do Movicol

theskyispurple · 02/08/2022 11:47

Yes to magnesium and yea I'm on that group too

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