DD1 is SLD/PMLD/MFTE (Medically Far Too Exciting). She's got the usual patchwork of support from school, social care (small amt of DPs and dom care) etc. plus in theory continuing healthcare funding though that award is fairly recent and they are dragging their feet about setting it up. She's got about 9 months till she turns 18.
During the pandemic, it seems a lot of Transition stuff has been put off and they are only now dusting off the paperwork and I suspect are going to rush a lot of it. I have just had a Transitions person from Social Care turn up on a Zoom EHCP Annual Review - first time I've seen them, bad line, didn't say much except that they have already done most of DD1's adult care assessment (!! I have never met this person before and afaik they have never met DD1 either) and I suspect I will be presented with a fait accompli to sign off and that must therefore mean it's going to be a crap package. I imagine they are going to assume that CHC will pay for her adult care and of course the CHC transitions person has not been in touch yet and she may not even qualify for adult continuing healthcare.
To fight DD1's corner, I really need more info about how adult care maps on to children's care, and though there's loads of info out there tbh it's all pretty useless. Because what you are entitled to and how it is funded and how it's delivered and who pays for it seems to have so many permutations and combinations that the advice mostly says: "you may be entitled to this or you may be entitled to that or actually you may not". Factually accurate, not a lot of use.
What I need to know is what a child of DD1's profile is entitled to, and how it usually gets delivered in the end.
Has anyone with a similar kid been through this recently? Where did you get your advice/info? What do you know now that you wished you had known beforehand?
Thank you!