I’m not sure if I’m posting in the right place...
DD2 (13) has just been diagnosed with epilepsy. I’ve had concerns for a couple of years and FINALLY it’s been taken seriously... and seems to have been met with a bit of panic by the hospital, probably because they’ve spent two years treating me like I’ve got munchausens 🙄.
We don’t know anyone remotely close to her age who has epilepsy, know very little about it, and online research has frazzled my brain.
We have an appointment with the epilepsy team on Friday, they are saying she needs to start medication ASAP. She also has a 1cm cyst on her brain that has been picked up on an MRI scan. Her paediatrician says it’s small and irrelevant. I have no idea if he’s right (I have very little faith in him).
She had a seizure at school today and is really embarrassed about it.
I literally have no idea what I’m dealing with here.