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SN teens and young adults

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Dyspraxia diagnosis

4 replies

Steff3 · 28/11/2019 07:27

My son is 15, has Autism/aspergers. ADHD and hyper mobility he scored 0.5 centile in his dyspraxia assessment and yesterday we met for the diagnosis. I was informed that he has dyspraxia but she wont officially diagnose it as he clearly has hyper mobility. Can this be right? He clearly struggles, he cant run, swim or ride a bike and it effects his every day life. Especially when making decisions. Can I go above her and what do I do?

OP posts:
amyt250190 · 02/01/2020 19:52

My DD(15) was diagnosed with ehlers danlos hypermobilty type (eds) (different to just hypermobility but similar features), hypermobility seems to be more common as is EDS in people with Autism. A lot of people with EDS hypermobility and hypermobility (same with my DD) have issues with low muscle tone or hypotonia, worth looking into wether he has low muscle tone as this could cause a lot of issues and look a lot like dyspraxia, definitly get it looked into as this may not be dyspraxia at all and rather issues stemming from the hypermobility

Steff3 · 03/01/2020 10:03

Thanks for the reply, I'm pleased to say he did get the diagnosis last week for dyspraxia. A senior doctor looked at his case and although he does have hyper mobility and very low muscle density, so do I. So I knew his problems went further. At least we can move forward now and get him the help he needs.

OP posts:
amyt250190 · 03/01/2020 12:18

Glad everythings gone well and u got a diagnosis x

Bollards21 · 14/04/2020 07:52

Glad it worked for you my daughter is Dyspraxic and it causes a lot of the brains power to be working just to sit straight / walk etc. Leaving a lot less capacity for learning etc and making her very tired...needs lots of sleep. Good to have the diagnosis....keep pushing the system to get the best you can.

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