balloon retained gastrostomy tube child 13 months

[omen6666]

Does anyone here have any experience of their child having one of these to feed the child direct into their stomach or a PEG tube?

I was wondering if you had claimed the DLA Carers Allowance from the DWP.

If so whata nigthmare these forms are and could you give us an idea of what level of care allowance you got? Low/Med/High? It is taking weeks and we are still awaiting a decision

Thanks in advance

We too get high rate with a Gastrostomy but to be honest I think, like Riven, the rest of her is what puts her in there.

PEG = Percutaneous endoscopic gastrostomy. Its the same thing.

Does your baby have one?

My nephew has the balloon one and not the PEG but I assumed it would be one of the same. He has developmental issues as well and is having genetics done, they are unsure as to whether his condition has prevented his development.

He has the balloon tube because has had to have this due to reflux isssues and normal feeding food going through his mouth into his lungs and causing infections in his lungs and pneumonia and aspirations. He is no longer allowed to have his lungs cleaned out as this will have an adverse effect on his later life and his lung capability

He is 13 months but as yet has no teeth, does not walk or crawl nor talk. He is what they called a floppy baby and is having Physio regularly.

Best of luck to your in-laws. He sounds quite a poorly little thing. Hope he does better now his feeding is sorted out.

Thank you Riven much much appreciated. Thanks to all for their wishes too x