Feeling really down today

[KatyMac]

It's been 18 weeks since DD lost her sight

That's months

For something so temporary it would be gone by teatime

Sigh

I feel a bit of a fraud on here as DD's problem (if they are right) is only temporary but as someone once pointed "out other people having problems don't make yours go away" which I agree with but they do give you perspective

Oh don't worry, you can never get it right for some people!!!!

It feels like I have a much younger child - she needs so much supervision; just had a massive row about teethcleaning

Kart not quite the same but when ds was younger was told he has GDD end of .I pushed for some tests even though Drs kept telling me look some children have GDD and we never know why

In end got fed up said well never going know if you don't look see if there is a reason ,well eventually ds was seen by neuro and ds had MRI he has Cp and some lither stuff going on .and dint care what Drs etc say there is a differance in how dc ate treated when it is known why,now getting more help with physio Ot etc

.do not give up if you feel that tests should be done don't let them browbeat you

Kat - don't give up on the search for the physiological. My ds has global delay and after being fobbed off for years we found out recently that he is anaemic. Now i wonder what else is going on and will be pushing for more tests.

I would actually try to get very close to the RNIB - they may well have heard of similar cases be they psychological or physiological. Also even in the short term you all need support to be able to live your lives.

x

In touch with the NBCS quite a lot

Personally I found the 'not knowing' very difficult (ds had delays now it is called ASd and LD)and emotionally draining. The searching for answers the continual worry on top of the caring and adapting are a constant daily stress. Effectively the diagnosis you have been given is similar - you do not know the future either ( Ok they have told you dds sight will recover but when- and how hard that must be for a scientic mind to cope with))and presumably you have to put on an optomistic face for your daughter.
Sending ((Hugs)).

I would would (perhaps) if pushed (over a cliff) maybe consider (the meer possibility) that I might be a bit total control freak