Sensory information websites/Books

[want2sleep]

Can anyone recommend easy to read sensory websites/books etc

DS has SPD, Hyperacusis and has never had SI that has been on ds statement for now 3rd year

Now the sensory is more problematic than the asd and ds suffering very badly...want to change environment/coping strats for ds and need to know what/how each sensory area is effected as they all seem to be:

taste: limited diet/pica/vomits on textures
smell:will vomit or retch on certain smells
touch: doesnt like hand being held will attack anyone who slightly brushes against ds
hearing: covers ears, extreme anxiety, cant cope in assemblies, shops, carpet time etc
visual: goes hyper and agitated with fluresent lights esp in ASD clinic

So appears to effect every arrear ? I need to try to sort it out myself as letters from myself and solicitor has been ignored.

Trying AIT in summer and hoping it will help. School ds suffers most and trying to find a school that is suitble as ds cant cope with 2hrs a day (home ed rest of time).

TThe sensory problems really effecting ds and getting worse by the week...any advice or where to get more help appreciated.

Can you ask to be referred to a sensory Ot? Not all areas have them but I'd have been lost without mine.

Also recommend reading The Out of Sync Child and Too Loud Too Bright Too Fast Too Tight.

My dd is 10, we have been doing a brushing programme for a few months with support from sensory Ot. It has really helped with tactile defensiveness although I do have to do it approx 4 times a day for dd to benefit.

I will look these books up, thanks yanny

Agree with those books yanny recommended. I would also recommend 'The out of sync child has fun'. This covers each sense briefly and then a whole chapter on activities to help regulate that sense. It even gives appropriate ages for each activity.

I also agree re the brushing program. It completely regulated DD2's tactile sense and she was classed as severe. She is now in typical range.

DD2's other issues were auditory and visual and the Therapeutic Listening program has helped loads. She also has hyperacusis and playing a certain cd when she is having a bad patch sorts her right out. I'd highly recommend it.

HTH

thanks mumgoingcrazy as I need to know activities as the OT has never left any for us to do

Did the OT do the brushing programme? Also did the OT give CDs for listerning programme as OT (who has never done SI with ds told when I asked for auditory help after hyperacusis dx said AIT/listerning therapies was not the job of an OT)

What the hell does an OT do then if they dont do SI?

Thanks again ladies...I look forward to getting these now on amazon

want2sleep I would contact Ot and ask them what support they can they provide.

Our Ot came to ours and showed me how to do the brushing and joint compressions. Not all Ot's have sensory training though. Ours is the only one in the department so she is very stretched.

We spent 2 weeks of Easter hols brushing every 2 hours which was extremely difficult but definitely paid off. I was amazed at how much of a difference it made tbh, I vividly remember the first Monday back at school after the Easter hols. No issues with socks/clothes/labels/hair. It was the first stress free Monday in a long long time! However, if we don't do the brushing, the sensory problems do creep back in pretty quickly.

mumgoingcrazy do you find you have still have to brush daily/every other day? We are probably looking at another intensive period of brushing when summer holidays start. I find if we don't get in 4 in a day things start to slide again. Our neighbour kindly lifted all the bark chippings he had put down in his back garden as the smell made dd feel ill. Smell is a new one for us, very embarrassing to visit people when dd can't stop going on about how their house smells...

Want2sleep, yes our OT did the brushing program and Therapeutic Listening programme with us. We're very fortunate that all OT's in our local hospital are sensory trained. However, some are better than others. Our current OT isn't very good even though she's "sensory trained". Luckily we did the Therapeutic Listening program 2 times under a very good OT's guidance so I know when things are about to go pear shaped.

Yanny, I don't do the brushing anymore. We did a 6 week block of 6 times a day when DD2 was 13 months old (she wouldn't touch anything or be touched). This massively improved her. About 6 months later it was creeping back, esp when she was under the weather so we did a top up month and this seems to have done the trick. DD2 has now just turned 3.

We were really lucky that DD2's sensory issues were picked up so early (10 months old) and has had quite intensive SI ever since. This early detection was by an OT who was really really clued up and just 'got' DD2 instantly. She was put on a sensory diet by the time she was 13 months old.

HTH