to be honest ds eats like a horse if its something he likes but that is a very limited range of foods (at the moment chips, sausages, curry, chicken but only if its in a spicy batter etc)
the problem was he just wasnt getting enough calories from what he was eating and all the dystonic muscle spasms were using up those calories.
the tube was the best thing we've ever done. i was very against it and fought it for ages, i think everyone does as they feel like they have failed, but he is so much healthier now!
apart from the obvious weight gain he has fewer coughs and colds etc and heals much quicker too.
before the op he had a pressure sore behind his ear from his headrest, it was there for about 6 months but had gone within a week of getting the tube!
medications are also a doddle to get down the tube and you know they are having the full dose and cant spit any out!
it would probably be a good thing from your point of view as its great for getting enough fluids into them too, its been fab during this hot weather to keep him topped up with water.
i think a lot of people think getting a tube is the start of a slippery slope to not eating but it doesnt have to be.
if anything ds now eats more as he can eat whatever he likes now as he gets all his calories and vitamins and minerals from the tube feed so if he wants to eat chips every night of the week he can and the battle and stress to get food into him is gone