DLA and epilepsy

[roomforthree]

Back story - DD (3) was diagnosed with atypical absence epilepsy in January and started on epilim. She still has several hundred seizures a day. It is unlikely that she will "grow out" of having absences. During the absences she will continue to walk (or run), but has no awareness of her surroundings. This has resulted in many trips to A&E with head injuries and a broken nose, amongst other incidents.

Does the above count as a physical disability?

Walking outside is near impossible due to the frequency of the seizures. We have to carry her for any distance of more than about 20m - should I apply for the mobility component?

DD started afternoon nursery school 2 weeks ago for 2 hours a day. Do I need to give details of the school in part 32?

Any help much appreciated.

Thanks.

Yes, yes and yes LOL

Cerebra have a good guide for applying for DLA on their website

Thanks for the reply.

Brain's a bit frazzled at the moment (just sat exams) and completing the form has been such a drain.

Will check out Cerebra.

Another question - sorry.

DD's epilepsy nurse continues to refer to DD as having "up to 20 seizures" a day in correspondence - err, no, it's hundreds!

Will DLA people accept her opinion over my observation?

Thanks.

Could you get something from a different professional to put with the form confirming how many she has? To be honest it may not make a difference anyway unless there only being 20 a day would mean you had to do less for her. You need to concentrate on talking about what you need to do for her rather that what she experiences.

I used the Cerebra guidelines - very good (I hope!)