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Would you apply for DLA for a 2.9year old child??

26 replies

lisad123wantsherquoteinDM · 22/06/2010 10:43

DD2 is 2years 9 months and pead yesterday recommended a privtae preschool that works with children with ASD. They havent given her a dx but in her words she would get in on the report she will write. Its costly but she suggested applying for DLA. Im not sure they would even look at it, as im sure shes not too different to a normal 2.9 year old. They all require supervision, nappy changing, feeding ect dont they.
TIA

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SanctiMoanyArse · 22/06/2010 10:50

My expereince is, that is PAed suggests then apply. After all the PAed letter is instrumental in having the claim approved.

paeds don;t randomly suggest claiming DLA and see a wide cross section of chidlren; take the idea seriusly.

And send in all the BIBIC stuff when you apply.

Also, if you are applying do it on paper rather than online: if you call for forms now it will be backdated to today; start an online application and it can tkae weeks to fill in and will be from date submitted.

lisad123wantsherquoteinDM · 22/06/2010 11:03

BIBIC stuff is DD1, this is DD2 I get confused some days too.
I will call soon but i hate those forms!

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SanctiMoanyArse · 22/06/2010 11:05

Ah sorry LOL- have same issue here, DLA for ds1 / ds3, but IEP's this week for ds1 / ds2 / ds3 LOL.

fanjoforthemammaries7850 · 22/06/2010 11:16

i got higher rate easily for dd when she was just 3,go for it.

fanjoforthemammaries7850 · 22/06/2010 11:17

she didn't have dx either,btw

electra · 22/06/2010 12:30

This reply has been deleted

Message withdrawn

coppertop · 22/06/2010 12:36

Ds2 was awarded higher rate care when he was 2.5yrs. He had a provisional dx of AS at the time.

I would apply.

lisad123wantsherquoteinDM · 22/06/2010 12:42

ok will try it thanks

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DJAngel · 22/06/2010 12:49

Yes I would go for it, especially if paed is supporting you.. We got higher rate for dd when she was just under 3..It helps massively.. Apply now before the govt threaten to change it/ scrap it!

StarOfValkyrie · 22/06/2010 13:55

lisad, get someone from the monetary unit to come and do the form. They know what they are doing. DS had DLA (higher rate) at that age.

Go for it.

phlebas · 22/06/2010 16:22

my ds got higher rate at that age too (initially awarded middle rate but we wrote to ask them to reconsider & they awarded HR - we were clearly entitled to HR 'cos ds doesn't sleep).

Marne · 22/06/2010 16:58

We have been getting higher rate for dd2 since she was 2.5 (ish), she has ASD. Deffently apply and i hope you manage to get her into the nursery, it will will be good for her, dd2 goes to a SN nursery and a MS nursery, going to both works well for dd2, she gets the therapy she needs at SN and she gets to mix with more verbal children at MS (which has helped her speech).

lou031205 · 22/06/2010 17:11

DD1 got higher rate when we applied at 2.11.

lisad123wantsherquoteinDM · 22/06/2010 19:23

i just thought that nappy changing, up in the night and supervision is normal for her age.

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AgnesDiPesto · 22/06/2010 19:57

I got higher rate at 2.5 for moderate ASD (up in night alot) without a diagnosis (but professionals letter attached) for DS3

You do more than you think. DS regressed so actually it was easy to see areas where he had been becoming more independent sliding backwards eg dressing self, washing self, toileting, feeding self - all went backwards or vanished, speech and understanding lost - then lots extra time eg restricted diet, routine issues, sleeping issues (wakeful). Then start on all the therapy (we do 20 hours ABA a week), reading up on ASD, meetings, appointments, not being able to walk from a to b without stopping a million times, making visual symbols, learning signing / PECS etc. All the adjustments you have to make eg not taking him to supermarket, not being able to leave him with granny /friends. Yes you have to supervise but could be playing upstairs and it wouldn't always have to be you - you could delegate.

Cerebra guide is really good.

To give you idea what would be normal for that age - DS1 and DS2 (no SN) both out of nappies at 2.5 and dry at night as well by 2.10. Could ask to go to toilet at 2.5. By 3 just took themselves. Talking in sentences. Could walk to shops / into town. Fed selves. started to dress selves. Could communicate needs - to anyone eg if ill, tired, hungry. Slept 12 hours straight. Ate well. Started making friends at 3 so could play independently. Tantrums rare. Could take anywhere eg came along on errands. We could leave them with relatives to look after (DS3 too much of an escape artist to leave 70 year old granny in charge). From 3.5 they had circle of friends whose parents we got to know and we would take turns having each others kids and nipping to shops etc. Trust me your life is much harder than it would be otherwise. I know what you mean you get lured into the idea that your DS is just younger than they are and lose track of what other children their age are doing. Its only when DS has a birthday that it hits me how different it is - usually I don't want him to have a birthday for that reason that it just feels 'wrong' as he's just not ready to a year older.

You could look up early years foundation stage online that gives checklist of what do at different ages and might show areas where behind.

roundthebend4 · 22/06/2010 21:18

lisasd are you near me think we discussed it know of somewhere that might be good for dd2

lisad123wantsherquoteinDM · 22/06/2010 23:46

thank you for all of that ADP, very helpful. She has some language regression and doesnt understand things shes asked. She answers yes to nearly every question, and no way could i allow her to walk without reins ect, shes a runner, also she falls over alot, but pead said thats likely to be the asd, but doesnt really cry when she falls over either.

Was it Tracks roundthebed? if it was im visiting tomorrow (too many conversations in my mind to remember

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roundthebend4 · 23/06/2010 05:32

No. Not sure how high functioning dd2 is so all depends but at Grove cottage in BS there is at least one child with what you would call classsic autisum

lisad123wantsherquoteinDM · 23/06/2010 08:22

she wouldnt be classesd as classic ASD, more high functioning. There is a special pre school here so will let you know how we get on

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roundthebend4 · 23/06/2010 08:48

Good luck Just ds Sn nursery have been great yes ds is at some areas above the other d. But as all thechildren have 1-1 it's very individual

GladioliBuckets · 23/06/2010 09:10

Do it - if she is eligible ten she should have it. You can always keep the money in a savings account and split it between her and other siblings later, after all they are affected too. Or if she is ASD, she might later have some expensive hobby/career path that you feel it would be vital to support.

GladioliBuckets · 23/06/2010 09:14

Also if you get Child Tax Credits and then got mid-rate DLA, it increases your tax credits and makes you eligible for Carer's Allowance.

With regard to chasing for a DX, have a look at this checklist at the end of the page.

GoodDaysBadDays · 23/06/2010 19:23

Echoing other posters, then apply if it's been suggested. DS2 was awarded higher rate at 2.7 and I had the same thoughts as you about ds needing the same amount of care as the next 2yo. It wasn't until I started putting it all down that it became clear how much more I had to do for him than a child his age without SN.

Put EVERYTHING down, absolutely everything and listen to the advice on here, it was a great help to me. And remember it will not be a nice document to read when you've finished as it's highlighting dd's negative points. Keep positive

SanctiMoanyArse is right to phone and order the forms to get the request date noted, but once you've done that you can then download the forms using Adobe, complete on your computer meaning you have loads more room to write, then print out, sign and attach to original form that is date stamped. Made my life so much easier being able to copy and paste big chunks as forms v repetitive and just find it generally easier to type rather than write now as it's all I ever do!

(I checked with them this is ok to do btw )

Good Luck

lisad123wantsherquoteinDM · 24/06/2010 17:25

have called up for the form, wish me luck!

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LeoDeb · 24/06/2010 17:44

Definitely apply, the paed will write a report and, DLA assess although that can be a bit of fight.

Good luck!