ds has dla should he recieve mobility?

[sneezecake]

as it says on the tin really.
ds has cp and can not walk. he recieves higher rate dla should he be getting the mobility bit too? or does he get that at a certain age? he's nearly 2.

Moblity comes in from age 3 long as they qualify for high rate .

he will get at 3 hth x

Do you get it automatically? DS is on higher rate care, but is doing so well on his ABA programme and can walk 10 miles without running off, so I never applied!

Star, you get High Rate mobility from 3 if they either can't walk at all, or are virtually unable to walk, or have severe LD with High rate care + severe behavioural problems.

From 5 you can get low rate mobility if they need more guidance and supervision than other children when outdoors.

no you have to reapply and for both sections not just moblity.At 3 i applied and was told we could lose the HRC and might not get moblity till he was 5.
they was wrong we got Hr but ds could not walk and then we just reapplied at 5 and got till hes 10 but he cant walk more than 10 yards and suffers pain with that and often falls

I thought it would be something like that. ds cant even sit unaided yet, so who knows about walking in a year and a bit?
thank you for clearing that up

If he can walk 10 miles you CAN get higher rate mobility. There is a provision for people with behavioural problems etc. I have posted it on here several times in the past. You can make a case relating to inability to follow instructions, lack of safety, impulsivity etc.

Davros, how high is the bar set for that? DD1 is 4.6, and we were turned down for mobility at 2.10. I didn't appeal, but she is still as bad now, as then. She needs constant and vigilant supervision when out. She has no sense of danger, very impulsive, runs off and so on. She would think nothing of walking into the road because she saw a leaf, for example.

The only thing is that on paper she would be described as 'Moderate' learning difficulties, not severe.

A few weeks ago, it took me 40 minutes to get her 85 metres, because she was refusing to walk and dropping to the ground. But she isn't like that all the time. She switches from not walking at all, to walking with impulsivity and no sense of danger, etc.

We have a Maclaren Major, and wouldn't even attempt to take her out without a crelling harness or that.

Lou I would consider trying again as at 2.10 they could argue lot of nt dc need high level of supervision but not so many nt kids need that kind of lev at 4.6

lou, I think it all depends on a bit of luck and who looks at the case! How stupid. What helped us was comparing DS to his NT cousin who is almost the same age. After being turned down, I wrote a simple letter stating that his cousin can walk to school at the top of the road or go to her grandmother's who lives in the same street BUT she is not allowed to, whereas DS couldn't do it at all, quite different. Also the story in your post would be a good one to use, way above what an NT child would need in terms of support out and about. If you have a good relationship with Paediatrician or someone, they could write something for you. But, looking at the criteria it might be worth waiting until your DD is 5 or get it ready for them to look at when she is 5? Here is a quote from the "rules"

"If you have mobility needs
blah blah (haven't pasted the bits that aren't relevant)
? you are severely mentally impaired with severe behavioural problems and qualify for the highest rate of care component
? you need guidance or supervision most of the time from another person when walking out of doors in unfamiliar places
If you are claiming for a disabled child
Your child must need a lot more help or supervision than other children of the same age.
blah blah again
? age three, if your child is severely mentally impaired with severe behavioural problems and qualifies for the highest rate of care component
? age five, if your child needs guidance or supervision when walking out of doors"

HTH

lou there are routes to qualifying for high rate mobility for children who refuse to walk even a short distance because of behavioural issues beyond their control.

Lots of info and links here from the NAS website:

www.autism.org.uk/en-GB/Living-with-autism/Benefits-and-community-care/Disability-living-allowance/D LA-high-rate-mobility-for-children-with-ASD.aspx

I'm still waiting to hear, ds has a dx of ASD but perhaps the advice could be adapted?

Also you will have been turned down immediately for mobility when dd was under three so it's well worth applying again.

Ds is the same, very impulsive and unpredictable. He has developed a serious phobia with regard to traffic and refuses to be put down anywhere near it even in car parks but he likes buses and would happily run out in front of one!

That is helpful. Without a doubt she will be awarded LRM, and I would happily trot to tribunal if turned down. But in my heart of hearts I do think she should qualify for HRM. She has a blue badge. She has a structural brain malformation which was present from birth. This isn't going away

Her 2.10 sister can walk without reins, and be trusted to stop at the edge of the pavement on side roads. She can tell me that she should be looking for cars, looks left and right, and says 'no cars', waiting for my say so to cross. She knows the boundaries.

DD1 just can't do that stuff. She can't control her impulses long enough to process the information. She has sensory issues that compete for the little attention she does have.

It does sound like higher rate to me. I think the phrase is "incomplete or arrested development of the brain"

Mention the sensory issues too. It's very hard isn't it when you see little dots of children toddling happily alongside their parents.

J gets higher for both, but the severe behavioural problems bit has to include 'reckless, violent behaviour' that may require restraint, iirc. So Lou and Star, not sure if that applies to your kids - it's a total lottery though.

Hmm, that is a point. It is reckless, and she does hit out if you make her go somewhere she doesn't want to sometimes, but I'm not sure I would class it as 'violent'