feedback from BIBIC visit

[lisad123wantsherquoteinDM]

Well we are back.
Hello to the lovely MNetter I met while there

Wrll it was very intersting. DD1 who has a dx of HFA does hide a lot of her difficulties and sometimes you wouldnt consider any difficulties at all.
They spent the first day with her, doing tests, and talking and playing.
They spent the next day feeding back, discussing and showing us a exsercise type programme to do at home.

We were told she has an IQ of 127, which puts her in top 5% of UK. However she also has traits of SPD and quite a lot of APD difficulties. They were able to explain that her brain pathways take the long way round to recieve messages and her short term memorny is poor. There was loads of very insightful stuff for us and so nice to not have to fight for any of it. We have come away feeling like we can finally have a clear idea of what we need to do, rather than fallling into the pit of depair of not knowing what to do for the best.

DD2 was very happy there and didnt want to leave. Def worth the trip

Great. I love BIBIC for that. They pretty much say 'forget the professionals that come and go from your life, they can't be relied upon, so we'll do a detailed assessment and give you some training in things you can do yourself to make a difference, then you can enjoy playing on our equipment and swim in our sensory pool'.

Such a lovely place with lovely people.

we issed out on the pool as it was broken but we had a pool where we were staying so was fine

Hey,
we too are thinking about BIBIC,ds with Dyspraxia and behavioural issues(i feel from mental fatigue and sensory issues).Pead n ed psyc disagree, cause he is learning he has no problems!
Hope you don't mind me asking,why did you go to seek help from BIBIC,are you not getting help from your paed or others?Does your DD have difficulties in school?

we took DD1 as we get very little (20mins a week) in way of suppoer here. She copes but then it all comes out at home and we felt there was more we could be doing to ease her stress and low moods.
Def worth going

WOW, that sounds alot like our situation.DS copes at school but when he gets home he is very stressed, and fatigued.He is doing ok academically so he will never get help in the class.I feel he is overloaded with sensory issues from the class but i can't get them to listen!!
Going to seriously think about it,i got some info from them.
Thanks for sharing your story.

I knew there were issues with her coping with changes, but really intresting to know that if you change one thing in her day plans she then has to have it explained that the rest of the day will continue as planned as once that change is made, she cant think how it will link back, does that make sense. We were a little hm about the whole thing but very glad we went now

I thought they were very helpful and the report was useful HOWEVER I have found school, health professionals and EP to be very sniffy about the report. Very dismissive of it and it's not been actioned.

It may help with SAssess though.

That's interesting debs (more evidence of complete arbitrariness of the system) - we've had the opposite reaction to the BIBIC report, our paed actually did away with the supposed multidisciplinary assessment & based her diagnosis purely on the BIBIC report & CARS result & SALT used it as an excuse to basically do fuckall in the way of assessment

Blimey! The CAMHS team here were very snotty, peering at the report, turning the pages as if it was contaminated and saying 'who are these people'.

OT was very dismissive of the sensory programme too saying it was not evidenced based.

EP accepted IQ tests etc but said working memory problem was no big deal as it was still within the average range (38th centile compared to IQ at 95th).

ds went back in early days when we was struggling with any kind of support and needed a honest picture of where ds diffculties lie.They was fantastic first people to be honest though was quite sad seeing it in black and white

Now we know where his diffculties are am targetting proffesionals to see privatley to get in way of reports and support, so for us there wont be a trip back to bibic

I think it is because they are 'power to the parents' people and as such their reports and advice is made that way, so perhaps not strictly always the best practice, more what parents can manage iyswim. I think they are more, give the parents 'something meaninful' rather than the accurate, best that is really just pie in the sky in today's climate!

Well BIBIC for us was great. I didn't really learn anything I didn't know. Though I was shown how to do the body brushing I have been waiting for, for over a year from the OT here. We also have a lot more help with regards to SPD which my son is profound in all areas. With major help around tactile, auditory, proprioception and olfactory.
Unlike the other lovely MNetter I met whilst at BIBIC my son is in the lowest centile which was interesting. He wasn't consistent with colours and shapes. He also didn't know his letters from his numbers. He found it hard to sequence 3 pictures and couldn't say what was going on in a picture.
They have also tried to help with behavioural issues but also said they would be hard to tackle. They also said he had so many problems, too many to deal with in 2 days, that issues were prioritised. With BIBIC wanting his tactile and auditory problems sorted first and if we have time and manage to fit them in do the other exercises. They also stated that the profs involved are overlooking quite a few of his issues and dealing with him the wrong way. So for this we also have a list of startegies to try and motivate him.
They have asked us to go back in 6 month where they are going to do diagnostic tests and write a report to help him get the official dx he needs!! As well as deal with communication.
I also took my dd with me who is completely opposite to ds, has ADHD and ODD, absolutly loved the music room, but ds didn't!! Although she wasn't down for an assessment they are trying to help with a few of her issues also.
Can't wait to go back!!

Thanks for the feedback Lisa and Devient. I'm glad it proved useful. I'm convinced BIBIC is the way to go for us too.

I'm actually considering it for DS1 as well as Ds2. He's been diagnosed with dyspraxia but has lots of apergers type traits but has no support or help, as his paed thinks he isn't too bad as he can play imaginatively (in her opinion).

We've just come back from the holiday from hell with DS having huge tantrums once or twice a day due to him not handling the change of routines and the fact that we can't plan every hour of the day and follow it to the letter while we're away. So I'm excited to know that BIBIC can help with his issues too.

I will try and phone them this week. I got the info pack before we went away and it did seem good.

Thanks again for the feedback. I feel like
there's a positive step I can take now, as I was a loss at where to go next with DS1 (and DS2).

after yesterdays appointment we are going to be taking DD2 for an assessment when we take DD1 back. She has more sensory issues than DD1, so certainly the programme we have for DD1 will be useful for both and the pead yesterday agreed with it too
Im now in the middle of putting together our Therapy box for the girls, not going to cost much but need to gather bits in one place

I'm glad it went well lisa

We have had lots of positive feedback for report however BIBIC used to have an outreach centre heree (it closed) so tehy may be more in the know IYSWIM?

Oh and WRT to why tehy are so good (IMO)

it's longevity i think; I went to school with the dd of one of the earliest managers and back then tbh they seemed very different- far more staid and a bit in with the officials iyswim. Remmerb that I am almost 37 LOL to work out how long ago that was.....

They've been about long enough to get to grips with new developments, survived a spilt with a break off group (hence Brainwave, whow ere the Kerland Foundation before) and have changed a lot of their early techniques and ideas.