what do they do at CDC?

[lisad123wantsherquoteinDM]

With DD1 we bypassed CDC and went straight to CDAC. However DD2 has CDC tomorrow with same Pead that dx DD1 with HFA. DD2 saw SALT just over a week ago and her report is intresting. The Special needs health visitor is coming with me. Physically she is ok apart from an unusual gait, just wondering what else they do there.
TIA

Hi Lisad,

The do the Ruth Griffiths developmental test in your area, and ask some questions about history. The Paed will also do a physical examination to check for any odd physical features or marks (autism symptoms can sometimes be a result of child abuse) to give an indication of any developmental issues.

It is an assessment to see whether you need a further referal to the CDAC basically and a way of massaging their waiting list statistics.

Do you have a good idea what you think they will say about your DD2?

well i do think its either asd or spd with dd2. We have been to BIBIC this week and they said to try the exserices with her too. I have a report from the nursery nurse that see's her saying about fleeting eye contact, hand flapping and repetive behaviours and echolalia (SALT conforms echolalia). Special needs health visitor has seen the not being fussed by other children and repetive play,.

Do you want a diagnosis right now? Because if you do, be prepared and be quite insistant at the CDC. If you don't get a formal diagnosis, get them to write down a working diagnosis as that will get you DLA and possible a referral to some of the services (if you are insistant).

hth

We would rather a dx now if possible because early intervention shows great results but only comes with dx in Herts
Do they give dx at CDC? I thought it always had to be cdac?

They 'can' dx at CDC, but they'll probably make all kinds of excuses why not. You might not come out with a diagnosis, but if you go in demanding one immediately so that your dd can benefit from early intervention you 'might' get somewhere. If they say no, then get very cross and upset and demand they tell you 'when', - you might get bumped up the waiting list or simply get a 'working diagnosis' which I believe DOES get you some early intervention.

well its with dd1's pead so she knows me well enough to know i dont stand for messing about. She'd be the same pead we would see it CDAC and just have a SALT there, but she has given her report in too, so maybe we might not have to fight this time round

Do you really think herts early intervention gets great results?

any early intervention is shows better results, but herts only give you it with dx and a fight

lisa wwho is your paed ,ds saw Dr gallowaway recently at the CDC multi meeting , mind were still waiting on report which take 6 -8 weeks apparently in BS.
Know ds needs are differnt to your dd2.Think she does tend to deal with the under 5 as she squeezed ds in as he is 5 in July , but did find her non commital and seems think school Lea would automatically provide support equipment without a fight and argh the fecking griffin assesment again, but she did get the ot and the physio there so kinda forgiven her and she was better than ds last community paed , but to be honest she was struggling with all the other proffesional involvement needed

We saw Dr Adejari today, she is nice, and helpful if not a little on the causious side.
hope u are doing ok

well it was intresting. Lucky i had sn hv there to backme up and a report from the community NN. She decided that it is likely she has asd but as she is so young and there are some "positive things" about her she didnt want to rush it. Im ok with that and she will see us again in Nov. In the mean time she has made a referal to the early years support team, opps classes and SNHV is sorting out a TAC.

Good that there going put things in place .to be fair have found herts lea not to bad long as I remind them ever so often that I know what I'm doing and not scared to do what ever is needed