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Original poster

Feel a bit sad today

53 replies

ThomCat · 14/07/2003 10:25

It's no huge thing, just feel really blue about stuff today. Saw physio on Friday and they want to fit Lottie into some metal contraption to make her stand up. Don't know yet how long each day etc. She suggested it, asked me to think about it and I said no let's just do it. Going again Thursday so may be taking it home then and will know more about what it involves. Just feel sad that she has to be forced into this thing and bolted in. It's no biggie I know but can't help but feel blue. Didn't help I suppose when on Saturday night there were 3 kids there younger than Lottie and they were all mobile and talking. I know I should shape up and it's all for the best blah-de-blah but just for today I feel low / blue / teary etc.
Sorry to come on here being all miserable!

OP posts:
chatee · 14/07/2003 19:45

ps she now uses a kaye walker and can get about herself

MABS · 14/07/2003 21:03

Thomcat - onnly just seen this as i've been working today - massive hugs from me too. I think the pink glitter paint previously suggested, sounds fab for the fram, take care all of you. xx

eidsvold · 14/07/2003 22:05

sorry to hear things are getting on top of you but you always seem so positive - I have found it very helpful to me.... I bought myself a notepad and the saying on the top says..

WHen life gives you scraps - make quilts.

I have tried to make that my motto from now on.

The idea of painting/decorating it is fabulous - pink glitter paint and transfers sounds brilliant.

Keep your chin up

Original poster
ThomCat · 15/07/2003 10:25

Oh girls - what would I do without you. I have told my two best friends about the support I get from you and they are both very grateful that you are all so supportive and helpful!! Lou and Chatee - thanks for the table suggestion. I know if I didn't have your warning about the table not fitting around the frame I would have been dissappointed so that was great, and Chatee to offer to ask your Dad to make a table for Lottie if we can't get one from physio is just amazing and I'm incredibly touched and warmed by such a generous kind offer, a massive thank you.

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Original poster
ThomCat · 15/07/2003 10:29

PS - Edisvold - great motto, really made me smile, have made it my screen saver!

TaMum - you're such a sweetie - bless you, fab idea about the table and how lovley to put the link there - XX

Princess PeaHead - fab decorating idea! I'm loving your work.

and to everyone else who was kind enough to post their positive messages - it means a lot - thanks

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Original poster
ThomCat · 18/07/2003 10:37

Hi girls - just a quick update, the stand we tried Lottie in yesterday didn't work as she was put in facing the support and then a strap goes under her bum, so therefore she still wouldn't put her feet on the floor. Not at all surprised and knew it wouldn't work when I saw it. Still no worries we'll try another one next week, this time with one that will strap her ankles down and therefore make her keep her feet on the floor. She cried lots but inbetwwen laughing (I was entertaining her whilst she was being strapped in), so not as bad as it could have been. I also saw the head consultant who said 'does she really need a stand? I think she'll get there on her own'.... so feel generally much better about it all. We'll do the stand/frame anyway as it'll help her hip muscles etc and get her used to bearing weight on her feet but don't feel gutted anymore.

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2under2 · 18/07/2003 12:04

Thomcat, have only just spotted this thread and want to send you big hugs. I hope the frame works out for Lottie - I'm sure it'll be very exciting for her to have a new perspective once she gets used to it. And just think - you can make chocolate krispies together.
((((Hugs)))) to you and Lottie!

Original poster
ThomCat · 18/07/2003 12:56

Thanks 2under2. I hope chocolate krispie cakes won't be too far off being made by the two of us. Thanks for hugs - X

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fio2 · 18/07/2003 13:28

Thomcat glad you're feeling better today. Im sure lottie will benefit from her treatments(and it will be only short term with this frame wont it?)Smile

easy · 18/07/2003 13:56

Thomcat, Keep smiling, anything is possible.

If it's any consolation, my parents were told I would never walk, and although I got basic physio, no-one ever really tried to make me. When I was 8 I basically started on my own, and by 11 I was in mainstream school, even joining in things like rounders (obviously badly).

I'm not suggesting that Lottie would (or could) do this, just that we often find our own way round our disabilities.

lol and hopes for you

Original poster
ThomCat · 18/07/2003 14:09

Cheers Easy, and good on you. Hope you're feeling OK, or a least improved, today. xx

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easy · 18/07/2003 14:26

Yup Thomcat, not bad. Meet me over in _chat if you have time

Original poster
ThomCat · 18/07/2003 14:29

I don't have time to be honest, but sod it, see you there!!!!!!

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Original poster
ThomCat · 30/07/2003 13:10

Had physio appt on Friday and we tried another stand. This one not only worked but I would describe that particular appt as the best ever! There were a few tears at the beginning but once she'd forgotten she was in the stand/frame she was incredibly responsive to the speech therapist. No actually physio going on apart from the standing of course, but she was chatty and doing her signs and being generally responsive and happy. She cried when we took her out as though she suddenly remembered where she was and thought to herself that she wasn't supposed to like it and got teary! Little minx! So hopefully having it delivered on Thursday and I'm really looking forward to her being in it now!

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lou33 · 30/07/2003 19:59

Thomcat I'm so pleased for you. Well done Lottie .

MABS · 30/07/2003 20:41

a good appointment then - well done little Lottie.

eidsvold · 31/07/2003 12:06

glad to read the good news. HOpefully she will continue to go from strength to strength.

Original poster
ThomCat · 31/07/2003 13:26

yeah, thanks girls. I'll let you know how she is after a couple of weeks of using it.
Thomcat xx

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eidsvold · 31/07/2003 20:12

tomorrow is a pretty special day for us - dd turns 1 and after a very traumatic stressful year and a half ( pregnancy) we are all amazed the time has flown in hindsight and somedays we never imagined we would get this far.

dd has changed our lives - for the better - she is beautiful and strong and incredible ( as you know when looking at your kids and what theyhave been through)

Yet i am feeling a little sad when I look at her and compare her with others ( don't usually do this- just compare her with her if you know what I mean) but know plenty of other kids have achieved so much by their first birthday and I worry whether she will ever get there - with things.

This all sounds so silly as I know she will and I know it is all in her time and her stages. I also know that we are incredibly blessed - there are plenty of others out there facing more difficult times and stresses than we have and probably will( some of you even) ( so feel a little selfish)

BUT i can't help feeling a little sad.....

Jimjams · 31/07/2003 20:17

Birthdays are always like this eidsvold- but have a lovely day and giver her a big kiss from me!

fio2 · 31/07/2003 20:34

eidsvold thinking of you, hope you have alovely day tommorrowSmile Like jimjams birthdays are like that.

Thomcat glad lottie got on so well tooSmile

doormat · 01/08/2003 13:10

hi eidsvold agree with jimjams and fio2 that birthdays do get like this.It gets easier though as the years roll by (well sometimes)
Also she will get there,maybe longer than other chidren but she will in the end and if she doesnt hey you still have a wonderful, special daughter that is a fighter.She sounds really sweet.
ALSO
Congratulations to your dd on her 1st birthday and I hope she has a lovely day.
lots of love
doormat and family
xxxxxxxx

eidsvold · 01/08/2003 21:18

well thanks for your support... We had the best day - opened presents that came in the mail.. went to Colchester Zoo for a few hours. SHe loved the Zoo... she was particularly interested in the monkeys who were playing and fighting... she also touched the sides of the large aquariams as the fish etc swam past. She was so smiley and happy all day. Even went for her nap without moaning. She loves her medium sized stuffed toy monkey - bought with grandad's money.

Chocolate birthday cake with dinner.

I know you are all right and I know it will get hard with birthdays - but today she just made me so proud of her...

We have just had a smashing day. Much better than last year

Jimjams · 01/08/2003 23:43

Glad you had a lovely day today eidsvold.

Original poster
ThomCat · 04/08/2003 09:57

Soory to hear you were feeling a bit blue Edisvold but equally pleased you had such a lovely day. We all go through our down days but we get through them and know our children bring us so much joy at the end of it all. It's hard not to compare sometimes with other kids. I have a large close circle of friends who live 5 -10 minutes awy so I see them all the time and their kids are all very close in age to Lottie so it's hard not to feel sad sometimes. esp when kids 9 months younger than her are crawling etc but they all make such a fuss over her and she's such a happy lovely child that the hurt goes away. As long as she's happy that's all that matters really at this stage. Anyway hope you have a good week - LOL - TC x

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