come tell me about mild aspergers pretty please

[mumofatrio]

possiblity my ds has it (nearly 7).....

bless him

Right.. Firstly how to get a dx.. We tried camhs .. They were great until my ex got involved .. So we went via referal to community pead, then on to multiple discaplin team.. Occupational therapy, educational psych was involved , clinical psych, school ( who were great in our case.. But this doesn't always happen),SALT and senco all had a big conflab and a good look and all yelled asd /as at us... So start with your gp.

We had lots of people involved because ds2 also has dyslexia and dyspraxia on top of the AS. It can take a long time and this is wearing..

How do we cope... Well life is interesting to say the least.. Ds has a horribly high IQ but acts like a 6/7 year old a lot of the time.. In the body the same size as mine.. But throw in violent destructive melt downs..
Having said the yuk stuff he is the most adorable loving hard working child and he tries so hard!
He is immune to pushiment as such.. But responds to praise..
We cope because were his family and he is part of our family and he's great.

Stratagies are out there.. You just need to find the ones that work for you.. Dx basically gives you the areas to tackle!

Don't worry about where it came from.. It doesn't matter really.. And let's face it you are already coping.. You just don't know it... If/ when you get your dx.. Remeber this... It won't change the child you already know... You just will know more about how to help them.

And lastly.. Yes to everything on the tick lists! Ds2 ticks all the bliming boxes!

( have made a needs/ issue list of current issues for appointments in the near future... So far we have managed to list 56 indivdual needs and or current issues!)

do I worry about his future... No.. Because I am going to get him all the tools he needs for life.. And he'll probably have a fantastically geeky job!

Oops sorry that was so long!

So long but soooo good!

The sn section is my favourite part of mumsnet.
So upbeat and positive, whilst staying mostly clear-sighted about realities. You've cheered me up ACC, I think I'll leave now whilst I'm on a roll.

Goblin can you tell I have been sorting paperwork out regarding ds2 allllllll day! Oh and we had a mini meltdown tonight to top it.. He is now asleep.. But wittering on to jar jar binks at the same time.

( meltdown btw was because he was offered a choice for tomorrows breakfast!) ahhhh such is life.

Question for Marne how old was your daughter when she was diagnosed? I'm only asking because our daughter is 2 1/2 and sounds exactly like yours! She loves numbers, counts to 50 forward and backwards, loves reciting the alphabet, singing songs but mostly its the numbers that fascinate her. If you're in a Tesco and hear a toddler shouting out the aisle numbers that's my girl

We're waiting to hear about her multi agency assessment probably in October/November. I was just curious what process you went through with your daughter to get that diagnosis. Thanks!

btw mumofatrio good luck and I hope everything goes smoothly for you and your son xx

thanks for your posts guys

I think if its ok youll see me around here now

helpful lovely bunch that you are

reading those lists or learning about as or anydeed any of the commonly discussed conditions on here.

makes me realise just how similar these children and adult are to each other

if there was a data base for does my dc have such and such

via a drop down menu it would aliviate much of the worry and guess work involved.

on topic sounds about right to me

true

on topic? sorry youve lost me.

mumofatrio, I'm one of the mums who's also on the autism spectrum and has a ASC ds (er, and dh! ). Started off typically ASC - big stimming issues, totally pedantic, obsessed with things for literally year after year, etc etc, few friendship skills, repetitive language, you name it I had it (apart from tantrums - girls can tend to be quiet and afraid rather than boisterous and bolsy).

Now I'm still as autistic, but I've got friends and family and job and etc etc. I've had to do it all differently to the ways others do it, but it still counts.

Don't worry. Well, you will, we all do. But never think it'll always be just like it is now, or that there's no hope for your ds to ever have enjoyment in life. Good therapies and loving people around us can make a big difference to every one of us, no matter how mild or severe the ASC.

My ds sounds like a combination of goblinchilds and coppertops. He's 13 and was only diagnosed with ASD 18 months ago- the upheaval of starting secondary made him suicidal despite being quite keen to go there.
As long as nothing much changes, he plods along ok. Academically he's doing well but his social skills are not great so he finds it really hard to make/keep friends. Saying things bluntly and taking things literally sometimes gets him into trouble with his peers.
Have had the genetic test done and he has an extra 'arm' on one chromosome. My test came back negative but exp had already accepted it's from his side before getting his result- his nephew is autistic. Watching exp and ds together at CAMHS was toatlly illuminating for me, but it means that they are close as they 'get' each other.
Encouraging socialising is my main priority atm, so if he mentions the possibility of meeting up with anyone out of school I jump at it.

aw thanks guys

whats HFA?

High Functioning Autism

marriednotdead, mine found starting secondary very challenging. When teased or confused or uncertain, his default setting was pure rage, homicide rather than suicide.
The school was very keen to work towards a solution as fast as possible.
Agree with the social stuff; he found kayaking and scouts plus history and geological societies the answer.

Thanks for the suggestions goblinchild. Not found anything he's passionate about yet apart from his psp and football with dad.
This area has loads of activities through the summer holidays, usually published in a big booklet. Have already told him we will find stuff for him to enjoy so it won't be a shock when we go to book things only 3 or 4 weeks beforehand. Suprises are so not welcome.

My 8 year old has mild Aspergers.
Mostly you wouldn't know it.
But at other moments the differences show (painfully).
Funnily enough, he didn't have half the problems that on the 'triad' that are meant to point to a diagnosis, just the social impediment. But apparently that was significant enough for an Aspergers diagnosis.
I love love love my boy the way he is. He may have a rocky path through life as the social stuff is such a big deal. I guess every kid has something that they find tricky, and we've just got to help them the best we can.

if my gp disagrees with my feeling that my ds has aspergers and poo poohs the idea...like last time i took him, what do i do?
can i force her to refer him to a specialist?

Our health vistor refered us after nursery voiced concerns....been very helpfull and supportive throughout. Still waiting for a diagnosis at a combined speech and development clinic. I have realised so many symptoms went unoticed, she was my first shes nearly 5, her brother is sooo different at 10months.

Im not sure if her symptoms are different as a girl but;

-one way conversations on her terms only, chosen subjects vary from films to maths but is very repetative.
-zones out/talks to herself.
-number/letter obsessive/very clever!
-wants friends but lacks skills/understanding has one friend at nursery...now becoming an obsession.
-Has a hearing sensitivity, hand dryers, hoovers, birthday parties, karaoke, loud boys, trains, music...
-innapropriate behaviour
-no sense of danger, hot and cold, strangers, roads, heights.
-has lots of phobias, flies, dogs, grey clouds, any of her past obsessions..pepper pig, pingu.
-suffers anxiety
-likes to play alone when other children visit.
-loves routine/school
-excellent memory
-very happy/loving
-responds well to short instructions
-has never slept well, still plays till late in her room and gets up at 5 or 6am.

Were pretty sure she will get a diagnosis soon but are unsure of the difference between Aspergers syndrome and HFA. Ive read it can be down to her language development....its quite poor, she still babbles but occasionaly turns into an american!

We still go into occasional denial but its sinking in. We adore her, everyone does.