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SN children

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Original poster

Quirky, Spiky and Complex !!!!

15 replies

Bluesunbeam · 09/06/2010 07:53

My DS has been described like this by a few Dr's, therapists, etc.

In different combinations and often all three!

Is this some kind of medical term that I am supposed to understand? Maybe it's a new dx?! Not much to work on though!

Why can't they just say what they mean, I have developed a thick skin and can take most things now. Do wish I had found this board earlier though!

Anybody esle come across these terms in relation to their child?

OP posts:

oddgirl · 09/06/2010 08:37

Loads of people ahve described DS as complex and quirky...spiky new one for me though...think these are just words used when no-one really sure what the hell is going on with some children...I sometimes feel people think any child on the spectrum should behave in a given manner and dont seem to take into account individual personality traits...this doesnt seem to happen with NT children who seem to be "allowed" to have individual traits without it being part of their being "normal" iyswim.

Ampersand44 · 09/06/2010 09:02

I know someone whose DS was described as having a 'spiky profile' and from what I understand it was important in ascertaining need for SA (I think in that profile should have been more smooth and consistent).
Brings lovely image of a very cute hedgehog (I mean that in the nicest way and as a way to try and smile through that thick skin - do wish they would stop and think what their words mean to us and show some tact though !)

janmumto5 · 09/06/2010 09:06

3 if my children are described as unique complex children i personally wish i could have a simple d/x but know it isnt going to happen so being unique makes them even more special to me x

devientenigma · 09/06/2010 09:29

Hi, my son is refered to as challenging and complex, though he does have a number of dx's also!!

Ampersand44 · 09/06/2010 09:34

Should have added that in our experience 'complex, wide-ranging difficulties' was code for 'so we will pass you on to someone else but no one is prepared to try and coordinate it all and it would be far to complicated to diagnose'.

PipinJo · 09/06/2010 09:36

This reply has been deleted

Message withdrawn at poster's request.

Original poster

Bluesunbeam · 09/06/2010 09:52

Thanks for the replies.

It's good to know that others have similar problems.Just wish they would all sort it out and decide which way we are going!

We don't have a dx for DS who is 6 and that doesn't really matter to us. What does matter is that he gets the appropriate help so that he can progress and stop falling further and further behind his peers.

He is very immature socially and although he speaks alot(constantly!) most of the time he doesn't know what he is talking about. When he runs out of things to say he just recites his favorite book word for word. Very irritating at times!

And he still can't write his name at the end of year 1, but he can now hold the pencil even if it's an unusual grip!

School are applying for a statement so am hoping this will help him to progress when it is in place.

Amper I love the cute hedgehog - I think I'll try to remember that one!

OP posts:

sugarcandymountain · 09/06/2010 10:51

DS is all of these - most commonly used is 'severe and complex'. Lots have described him as 'a puzzle' or 'enigmatic'. Which doesn't help when you're relying on the professionals to give advice on how to help him

He has a spiky cognitive profile and kinder people often say he's quirky.

jiggles01 · 09/06/2010 17:29

DS 11 has been described as -Spikey profile, complex and severe, unusual and unique case!!

lou031205 · 09/06/2010 20:01

DD1 is 4.6 and is described as 'complex', 'spiky profile', 'unusual', 'challenging', etc.

All the 'spiky profile' means is that she is quite able in some areas (ie. toilet trained by day) but very behind in others.

Many children with SN and Global Development Delay would be similarly delayed in many areas. DD1 has some areas very delayed, some a little delayed, and some parts of some areas quite advanced. It makes it hard to place her.

troublewithtalk · 09/06/2010 20:09

This reply has been deleted

Message withdrawn at poster's request.

RaggedRobin · 09/06/2010 21:32

i have a hedgehog too

"although he speaks alot(constantly!) most of the time he doesn't know what he is talking about. When he runs out of things to say he just recites his favorite book word for word. Very irritating at times!"

that's my boy!

RaggedRobin · 09/06/2010 21:33

his o.t. also described him as

"a piano where some of the black keys don't work very well, but it still makes music"

which i liked.

devientenigma · 09/06/2010 21:46

I was at a meeting where ASD kids were refered to as trains, they can only go the way the track takes them etc, whereas others are cars, can go which way they like, reverse, left right etc.
My son was refered to as the boat!! being a mixture of the other (down syndrome) and ASD !!

Original poster

Bluesunbeam · 10/06/2010 07:02

I now have an image of a piano playing hedgehog!

Thanks for all the replies, it feels better knowing others get the same descriptions of DC. Must admit I used to find it annoying but probably got past that now.

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