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Here are some suggested organisations that offer expert advice on special needs.

new test for ASD hmm,

9 replies

lisad123wantsherquoteinDM · 09/06/2010 01:15

sorry about source, someone sent it to me here

intresting but how many would be missed, especially if they are basing it on bowel problems which some dont have!

OP posts:
TheJollyPirate · 09/06/2010 06:27

I meant to post a link to this from the news but forgot so thanks for posting this lisa.

Yes - would be very interesting to have this - the research is quite interesting as not all autistic children have bowel problems. Interesting as well in light of the work Andrew Wakefield has done in the past on bowel problems in children with autism.

5inthebed · 09/06/2010 07:08

"This would therefore mean intensive behavioural therapy could begin before any permanent damage is caused."

I wonder how long the intensive behavioural waiting list would be, and what permanent damage I've caused my Ds2 by not getting him any.

That article isn't very well written either, not all children with autism have bowel problems.

StarOfValkyrie · 09/06/2010 10:19

Oh okay, - so now we are saying that behavioural therapy IS desirable.

FGS I wish they would make up their minds. And in any case, there ain't no one size fits all, in either treatement or diagnosis.

My DS met EVERY single criteria for asd on the ICD-10, but no, he has no bowel issues at all.

cyberseraphim · 09/06/2010 10:25

We need to get the therapies in place early regardless of other problems - It's not rocket science to see that an 18 month old not communicating like his peers needs intensive help. I don't understand the science of the study as they say they did not take either medication or diet into account when assessing the results.

claw3 · 09/06/2010 10:29

Interesting link, ds does have bowel problems, but worrying if a child doesnt!

I can imagine it now, but your ds doesnt have bowel problems, therefore doesnt have ASD

"This would therefore mean intensive behavioural therapy could begin before any permanent damage is caused" Are they telling us, intensive therapy stops 'permanent damage'? Why are we all not offered this intensive therapy once a dx is given then?

4nomore · 09/06/2010 10:37

This report on the same study suggests that the gut bacteria angle is red-herring.
www.colerainetimes.co.uk/nhshealth/Can-a-urine-test-diagnose.6343082.jp

amberlight · 09/06/2010 13:25

www.msnbc.msn.com/id/36568923

Another report saying there is no known link between autism and bowel disorders, though some children have both. Frankly with the amount of odd things many of us ate as children/odd eating habits generally, I'm not surprised that some of us end up with bowel disorders. But they don't cause the autism. They might make us feel really uncomfortable and cause bad behaviour or huge distraction for us because of that, though. But bad behaviour is not autism.

It's a different design of brain!

Actually there is good science happening to suggest that appropriate intensive social interaction can do a lot to help young children cope with the different design of brain. But it doesn't make the design of brain go away, nor the autism. It just gives us a better chance to learn skills we simply don't have automatically.

silverfrog · 09/06/2010 17:31

I odn't think anyone for a minuteis suggesting that bowel disorderscause autism.

I saw this on the news last week, and haven't had a chance to try to chase it up. It certainly looks intriguing.

From what I have gathered (and am back to using my phone, so a lot of links won't open for me) they looked at urinary profiles, and didn't select on the basis of gut dysfunction.

The conclusions seem to be that autistic individuals process foods in different ways, possibly due to different gut bacteria.

As a result, they are left with by-products which are dectectable in urine.

I know Sunderland worked along these lines too - testign for waste by-products due to incomplete breakdowns of certain foods. Sunderland, of course concentratedon glutenand casein (proteins) - the new study also focusses on proteins.

What was interesting about the findings is that there were three distinct groups:

NT children
NT siblings of autisitc children
ASD children

all with distinct urinary profiles.

THat is quite interesting.

I know Sunderland at one point said that up to 85% of ASD people might have difficulities breaking down casein and gluten - NOT that all of them would have bowel issues. I think it worked on a sliding scale.

What I do know is that dd1 has a typical LEaky Gut profile, according to Sunderland protocol (off the scale for gluten by-products). She did have bowel issues, which improved amssively after withdrawing gluten.

My step-son was also tested (NT) - his profile showed up as "not normal" - he is very clearly not NT (we were trying to persuade my step daughter to test, which is why he was tested)

Dh also gt tested (out of curiosity, since dss tested as not normal) and also came up with a "not normal" urine profile. whilst both of them did not show typical leaky gut profiles, they did not fit the normal range either.

All ttally anecdotal, of course.

But interesting nonetheless.

I don't think anyone is suggesting that this test would be the be all and end all. But if t is possible to pick up a percentage of ASD children so easily - well, I'm all for it.

silverfrog · 09/06/2010 17:33

sorry, meantto say dss IS NT, not isn't.

dsd is AS.

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