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DS is three today - I am celebrating by filling in another DLA form

13 replies

MiladyDeWinterOfDiscontent · 21/05/2010 20:57

My beloved ds is autistic and we can now apply for the mobility component. He really is quite bad in this respect and getting worse, plus he is only ever going to get stronger and heavier.

We were awarded higher rate care in February when he was diagnosed and I have now been sent three forms, one about ds, one for mobility and one for care needs, which are just as long if not longer than the original application since the one about mobility needs has more pages. Why I couldn't just fill in a separate mobility one I don't know. Perhaps it's supposed to keep us busy as parents of SN children so that we have less energy for challenging statements

I have been told different things by different people on the helpline. One said I have to write it all out again because it's treated as a new claim and another person said no, just write a covering letter saying there has been no discernible change in the last three months in terms of care needs.

Not that I don't trust them or anything, and probably because of my issues I am indeed filling in everything again but with no crossings out and better grammar / syntax That's my Aspergers problem though.

I know the criteria, no useful intelligence / learning disability and severe behavioural problems, but hard though it is to manage ds most of the time outdoors I can't seem to apply those phrases to my lovely little chap. Do you think these specific behaviours are examples of this general (depressing) statement?

He is an absconder, he uses a Little-Life backpack which will soon be too small for him, a pushchair which will also soon be too small, he is phobic around traffic, won't walk down a high street or most streets with low kerbs, won't walk in car parks, goes off at tangents, refuses to be directed, often won't move at all due to absolute meltdowns.

His sleep is so crap (will change that bit )and his energy levels so high that often he succumbs to complete muscle fatigue which makes it virtually impossible for him to make walking progress. He gets obsessed with things and follows those obsessions regardless of the purpose of where we are walking.

Sensory overload plays a big part in his refusal / inability to move. An ambulance or road works, a crowd of three people coming toward him or a dog makes him freeze.

I do wonder if I am reaching a bit with this but honestly when you have a child with the sleep habit of a colicky newborn for three years it weakens you doesn't it? Physically as well as mentally. I can't carry ds for more than seconds even now, I'm quite the shortarse waif

OP posts:
WetAugust · 21/05/2010 22:41

Hope you get the increased allowance.

Best wishes

MiladyDeWinterOfDiscontent · 21/05/2010 22:43

Thanks for your support WA.

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MiladyDeWinterOfDiscontent · 21/05/2010 23:03

WA I'm actually more concerned that the allowance we do get isn't decreased. That happens a lot when the claim is looked at again.

I don't think that anyone will believe how bad ds's sleep habits are unless I spell them out. So spell them out again I will.

My parents claim to not believe me that he has never slept through the night and think I am exaggerating but the fact that they have never offered to have ds to stay says it all!

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WetAugust · 21/05/2010 23:12

LOL @ your very confused parents.

I never had to do a DLA for DS while he was a child so have no exprience at all to share on that. I've only done the adult one for him.

Yes they can revise the award and it won't necessarily be the same decision-maker looking at it again. I was told that once the award is made the documents are sent to store and any fresh claim is treated anew.

But you can always appeal if the decision doesn't go your way.

Helen2boys · 21/05/2010 23:13

Quite a lot to deal with. I would tend to spell it all out to them again, upsetting for you as it may be, it needs doing. Hope they pay out more! x

Marne · 22/05/2010 08:55

Mil- Does his DLA run out soon? If not then don't fill in the care section again, just write on the form 'no change' (i know a few people who have done this), just fill in the mobility for.

Let us know how you get on, i keep meaning to apply for mobility for dd2 (4) but i havn't got round to it.

MiladyDeWinterOfDiscontent · 22/05/2010 09:17

You know I might just do that, he was only awarded it in February this year and it's not due for renewal until 2012. My hand hurts and I've only done a few pages

I'll keep you updated Marne

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NorthernSky · 22/05/2010 13:35

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NorthernSky · 22/05/2010 13:36

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MiladyDeWinterOfDiscontent · 22/05/2010 19:54

Cheers NorthernSky, I have a spare form so I will do that for my sanity and to save my poor hand.

Will I have to send all the evidence again does anyone know? They have sent me a "change of circumstance" form I see, complete with, "explain why you haven't told us before" questions so I would hope they would have all that on file from three months ago, perhaps?

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NorthernSky · 23/05/2010 15:10

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NorthernSky · 23/05/2010 15:12

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MiladyDeWinterOfDiscontent · 23/05/2010 20:15

I see, I'll type that letter out now. Thank you

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