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ADOS test done - long post!!

91 replies

debs40 · 20/05/2010 18:50

This was a weird one. Long post sorry!!

Both of us turned up as CAMHS always ask for us both to be there but then got told only one of us could go in the room. This was a pain as DH had taken time off work and I had organised and paid for childcare for DS2 for the day.

When the two therapists came into the waiting room, we had just got a packet of crisps for DS who had come straight from school and was starving and nervous ? he likes to munch when nervous. They were not happy with this so we waited while DS ate some crisps in the waiting room. The psychologist then tells me to leave the crisps in the waiting room. I say I?ll put them in my bag. She grabs them and says ?leave them on the chair, they?ll cause a problem?. I snatched them back and said? they won?t?. She says ?they will?. I say ?I know my own child, they?ll be fine, he?s 7 not stupid?

Great start!!

Test goes quite well in that they managed to engage him and got a good picture of him.

He was at a loss with the ?what makes a friend? questions ? they play with you. As for the marriage question, forget it.

He couldn?t explain feelings. He knew what made him mad/sad etc but not how it made him feel. He had no idea of anything he could do to irritate someone else.

He said he never felt lonely and couldn?t see how anyone could be??

He stumbled on the make-belief brush teeth ? ?I haven?t got a tooth brush? and it had to be explained that he had to pretend. He did it half-heartedly.

He managed to do stories with toys and random objects but there was quite a lot of copying of the psychologists stories.

When given a task to play by himself, he drew. A spinning top was placed by him and spun by the psychologist. He just tutted and knocked it away and continued with his drawing.

He got up and lolled around a bit but mainly stayed focused

He explained what happens after school ? describing a routine.

He was able to explain a story from the pictures but was a bit rubbish on describing the faces

He kept looking to me for approval but I wasn ?t supposed to say anything so I smiled lots and gave thumbs up!

All in all, a pretty accurate reflection of the complex chap he is.

I asked if they would let us have the results. No. I asked why? They were pretty patronising trying to explain that it is a multi-disciplinary process and parents get too worked up about the results (although the head of service told me that it all rested on the results in DS?s case). I get the feeling they don?t score them and just make a decision when they all sit in the panel watching the dvd!!

I did get an apology about the crisps though which strangely didn?t disrupt the process!!

Why you have to be spoken to as if you?re dysfunctional or stupid I don?t know!!

OP posts:
2shoes · 20/05/2010 18:54

sounds like you need to hit the wine later.
your post reminds me of posture clinics,
will you have to do it again?

debs40 · 20/05/2010 18:57

No. They will do a THREE hour interview with us next week and then all the information will go to the magical 'panel' who, not knowing him, will suddenly be able to decide the outcome. It is a crazy process but I have to say it was very interesting to see DS in action and see where the clear deficits and strengths were.

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2shoes · 20/05/2010 18:59

3 hours!!! I hope they provide cake.
(hope you don't think I am stalking you, but you have got me interested in ADOS now)

MannyMoeAndJack · 20/05/2010 19:18

My ds was ADOSed too (when he was 3yo) without either of us being present. It didn't last very long and took a very different form to that of your ds's cos my ds cannot talk so naturally, he couldn't answer any questions, etc. It was all done by observation of his behaviours.

We had the ADI interview the following week which lasted about 2hrs, after which we got the dx. It was very clear cut in my ds's case though.

Are you hoping for a dx? Do you think they saw an accurate view of your ds?

The ADI interview isn't too bad, my ds's clinical psych. gave us a list of questions beforehand to act as an 'aide memoir', which pretty much covered the main points.

StarlightMcKenzie · 20/05/2010 19:19

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debs40 · 20/05/2010 19:26

Thanks. MannyMoe I think he is on the spectrum but whether it is AS or PDD-NOS is anyone's guess as he has actually got/learnt alot of skills. That is very forward thinking of your team to give you an aide memoire we are told nothing.

They seem to be very cagey about results here however they just been taken over by another MHT which seems very much more togetehr so I have emailed the new manager and asked for their policy, suggesting explaining the process and keeping parents involved as they go along is a good thing.

Star - I can see exactly what you mean about ED dept thing. Will certainly be alert to that. The stupid head of the ASD team who went into school a few months back (and who we refused to have do the ASD tests) certainly tried that one.

DS is fine. He was a little thrown to start with but is now dancing around as if nothing has happened. He seems not to be bothered by these appointments. He never asks what they're for or why he's meeting people. Of course, I tell him who he's going to see and sort of why and he does get nervous but doesn't ask the sort of questions his little brother would ask - e.g. why? I haven't mention autism to him as yet.

As for the crisps, as the session ended, the psychologist said 'well you were right about the crisps, sorry'

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StarlightMcKenzie · 20/05/2010 19:38

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AndieWalsh · 20/05/2010 19:48

Sounds really gruelling, debs. Hope you can find some time to relax this weekend. Three hour interview sounds full-on.

(p.s. I don't understand why so many psychs / MH professionals in general feel the need to speak to us like we are naughty 10 yr olds. Yes, it has happened to me, too! I also cannot bear being called 'Mum', e.g. 'So what does mum think?'. Grrr).

StarlightMcKenzie · 20/05/2010 19:52

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debs40 · 20/05/2010 19:55

Star - that's what I have started to do about his problems like smells and taste. It seems to work better to tell him straight out that I know this causes him problems.

Andie - I have to agree on the mum thing because it has been used to 'downgrade' my opnion sometimes....well, of course 'mum' disagrees etc. Used as a friendly term in front of DS, it's no bother.

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AndieWalsh · 20/05/2010 19:57

Fair comment@Star

It makes me feel like saying stuff in the vein of: 'Well Mum thinks that Psych is a bit of a twat. What does SENCo think?'.

I am a mardy cow, though

debs40 · 20/05/2010 20:07

Like it Andie....bit of a mardy one meself!

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StarlightMcKenzie · 20/05/2010 20:27

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StarlightMcKenzie · 20/05/2010 20:30

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debs40 · 20/05/2010 21:14

Too true star..!

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TheArsenicCupCake · 20/05/2010 22:57

Glad that is over for you now.. Not a lot more to go.

( passes cake and wine!)

BigWeeHag · 20/05/2010 23:43

The OT this week called me Mummy, which I thought was a little over familiar. Actually, I wanted to bite her.

Debs, it's amazing how different it is from area to area! Our ADOS and ADI were at the same time, in adjoining rooms with a one way mirror so I could see the test take place, and I was given the initial results that afternoon. I kind of assumed that was the way it was done iykwim.

debs40 · 21/05/2010 07:55

It's good to hear that Bigweehag as I can use that with the new CAMHS management and say - this is how other areas do it

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StarlightMcKenzie · 21/05/2010 09:17

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claw3 · 21/05/2010 09:25

One down, one to go! Glad it went as you expected.

Now you have described the tests they do, it is very similar to what SALT did with ds.

She snatched the crisps away from you , oh dear that doesnt match the patronising little girl voices they always use, does it!

mrsbean78 · 21/05/2010 09:47

Oi, we don't all have patronising little girl voices you know

Just wanted to say that I've been involved in delivering and scoring the ADOS and it is VERY hard to score. You really do need consensus when you watch the dvd because the criteria employed are very, very precise and there is, whether anyone says so or not, quite a lot of subjectivity to it if you're not extremely careful.. you'll know yourself from watching it that the questions are very open and broad. The process became multidisciplinary precisely because people were too subjective otherwise.. it's weird when you deliver it, your opinion is often different to those looking on.. there's a lot of assessment of integration of gaze/vocalisation etc which is hard to gauge when you're also interacting, hence the need for the dvd for scoring.

Don't know if this is any help but it's not just about professionals trying to hold a power position over you.

The ADOS might be gold standard but like all assessments it has its limitations and this is one of them, especially as you work up through the modules when how the interviewer interacts with the participant can really make a difference to the resulting score.

Hope you find out soon..

claw3 · 21/05/2010 10:04

Phew Mrsbean, that is a relief i was beginning to think it was part of the CAMHS training!

Ds's therapist is so softly spoken i can barely hear her, im sure she inhales helium just before we get there

or perhaps im just a bit deaf!

StarlightMcKenzie · 21/05/2010 10:13

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SmellyBill · 21/05/2010 10:16

Glad the appt went o.k.

Our area is the same as BigWeeHag too - though we didn't have the ADI, it was just running through a series of q's with the paediatrician whilst the ADOS was being done. We were sent off for 30 mins then called back to discuss it all. I do know within the same county as I'm in but a different PCT they do the same tests as DS1 had but ring you a week later and tell you over the phone!

DS1's SALT called me "mum" throughout the Team Around the Child meeting and the minutes came through with my name then "mum" including the speech marks. I am not sure why they couldn't just put my name then [DS1's name] mum ? Still it does beat being called "mother" by the SN Dentist.

lingle · 21/05/2010 10:34

"it is a multi-disciplinary process "

I always award three points for that one.

("in denial" is my bullseye. I always aim for that but you can't have everything can you?).