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Attila - Help please

2 replies

fightingtheLA · 20/05/2010 07:46

Hi- you've given me some good advice on my threads (as well as lots of other MN'ers of course) and I'm after a little bit more. If I recall you are in Essex and managed to get s/m for your DS with Aspergers? I am just about to go down the SA route and wonder if you have any tips that might help me get an assessment. Thanks

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AttilaTheMeerkat · 20/05/2010 10:30

Hi,

I am indeed in Essex.

DS was originally dx'd with developmental delay and speech and language delay. ADOS threw up a couple of autistic traits as well; none of that surprised me really and it does not change who he is.

Always seek independent advice from organisation like IPSEA, SOS:SEN, ACE, Network 81 etc rather than just using Parent Partnership. Use the net; it is a valuable resource. IPSEA have good letters you can use and adapt. Also make full use of this particular section on MN; I was not on MN at the time but if I had been it would have been most beneficial.

DS has had a Statement from Y1 (five years ago now) and has done well on the extra support given to him. His statement was both specified and quantified in terms of support offered; that is very important because once you agree to the Statement proper it is damn nigh impossible to get it rewritten.

What we did at the time was apply directly to the Chief Education Officer at the LEA in question following IPSEA's advice. Gave them six weeks to apply, LEA of course say nyet to Statutory Assessment. Throwed that crass decision back at them and arranged a meting to negociate (we only did this because we thought they would do a u-turn based on all the evidence given). Turns out the panel threw it out originally due to lack of evidence from school - threw nice but firm wobbly at school and they then put all their papers in. SA gets granted!.

The above is a very condensed version of what transpired and does not go at all into any emotional pressures we were all under at the time. I feel still somewhat scarred by the whole thing and I still dread the annual reviews that having a statement entails.

Do not give up the fight, you are your child's best - and only - advocate.

HTH

fightingtheLA · 20/05/2010 16:33

Thanks Attila. Interesting point about sending the request to the Chief Education Officer as the council website says to send it to local SENaPS office. Think I will do what you suggest though as I have included in my letter the fact that ds has been left taumatised by the failure of his previous school to understand and meet his needs and now has to have professional counselling. Will be good for someone high up to see that.
You are so right about the SN boards on MN - wish I had known about them 4 years ago when last assessment was refused. I now feel a lot more confident about taking them on and am prepared for a battle. If it fails at least I can say I did all I could.

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