Cant lift ds

[roundthebend4]

ok how do you lot do it .I got bad back today and even dosed on painkillers even moving hurts and mean enough to cry , add in long term shoulder problem due to wear and tear and dislocation lifting ds over year ago but never recovered

But i need lift ds almost 5 on to dining chairs on to toilet into bath bed etc and on tueday have to go to Cambridge with him on train and since dont know when be back cant book ramp so will have to lift ds chair and all on and off and no gurantte member of staff for ramp to .Let alone buses that propbaly wont lower down and reckon since im pushing ds drivers presume wont need the ramp on off buses

no direct experience, but when you finally manage to access OT (think that was one of the referrals you were struggling to sort) could they help arrange for adaptations in house such as hoist?

sorry you are in so much pain.

Much sympathy from me. I go to an Osteopath when my back gets intolerably bad - it is £££ but it really is the only thing I've found that makes any difference.

I hope the pain eases asap for you.

we had ot from ss already (its the school one as in equpiment fine/gross were waiting on ) for equipment etc she agreed ds needs chair for sitting something help him in/out bath and the toilet but despite having dx from neurologist has said need to wait till after ds has seen the community paed some point in the summer like she is going change anything not .DD 7 had to help lift ds3 onto the toilet and into bed tonight
have phoned ds1 to ask him to come home hes meant to be camping

Asked out of hrs Dr but he wont prescribe anything less get to him and no way could mange dc on bus let alone stand upright

Hum.

Well it sounds like you need a portable hoist, I'd phone everyone under the sun who might know where one is, and see if there is one you can borrow temporarily.

How I manage it, fwiw, is that DD1 is only partially paralysed and actually as much of the problem is tripping/falling due to visual/mapping problems, or due to not understanding that eg stairs don't work by just standing at the top and leaning out... So the problems are different iyswim so I've got some mobility to work with. Although I can physically lift her, I've been planning on the basis I won't always be able to, so wherever possible I've been working out alternatives and training her to use them for the last year or two. She can now crawl up the stairs, bum shove down the stairs, climb into her own chair (which has steps) get in and out of the bath and on and off the change table (again using steps) &though all of this needs a lot of support/encouragement/time no lifting is necessary. If I had got a bad back a couple of years ago, before I'd taught her all this I would have been stuffed too.

Oh also when I did get minor back problems I happened across my first truly excellent physiotherapist. I didn't think they could do much (previous ones had been no help) but this one instantly diagnosed that the problem was me carrying DD1 on one side for so long that the muscles of my back were unbalanced and this was what had caused the problem, not the lifting itself. Swapping sides brought a miracle cure in weeks.

thing ot is holding back on i think is that ds can stand but he cant get of seats, baths,beds etc without help

He walk stairs at all used to crawl up luckily we now live in a bungalow .Am going make sone calls on Monday .

But luckily ds1 16 (almost) has picked up his messgaes and is on his way back home to help.Know im lucky that he does not resent his little brother
but do feel guilty that hes had to leave his camp early especially as its part of birthday treat but no way can mange and cant expect dd to do it.

Sorry you're in so much pain BUT, a big thumbs up to your ds1 for coming back to help his mum We need more people like him

It is possible to get a ramp on the day at a train station, but what they advise is ringing the day before, so could you do that for the return journey once you know when you're going to be coming back?

Trouble is won't know what time back till were on way back as hospital appointments never run on time

trouble doing that is the wait and risk train of train going bad enough when it's booked

lollipop credit where credits due both ds1 and ds2 are good lads but he was good last night he handled night time waking for me and breakfast for dd and ds3 to as well as helping tidy up

But I got stroppy this morning and dr came out as I really could not get out of bed so now in drug induced haze

Riven hats of to you and dh and really mean it not being sarky
th is first time my back has ever gone like this the shoulder is longterm but could cope with that

You must feel terribly helpless! Your son is wonderful but I guess that's because you're such a good mum.

I'm lucky in that I only have to lift toddlers but my back goes into spasm on a regular basis.

My GP has recognised that I can be very stuck when it happens and has given me some diazepam to take immediately it happens. Being able to take it withing the first couple of minutes has made a massive difference to me because it stops the spasm spreading and makes the recovery much faster. When you can get to your GP you need to go and ask for some. It's a much lower dose than for a tranquiliser so don't worry about being knocked out.

Do make sure you get some physio too which could help prevent this happening again.

Hope you're feeling better soon.