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teenager asd diagnosis & SEN assessments

6 replies

GoodDaysBadDays · 10/05/2010 07:03

Not sure where to post but feel this covers the more important areas atm, this may be long but bear with me, there is soooo much history that I can't go into it all but will try and highlight the main points

dss (13) has just moved back in with dh and me. He lived with us from age 6 to 12 after Mum's drug addiction became clear. Little contact with Mum for 4 or so years.(her decision) My and dss relationship was ok while he was younger but once contact with Mum started up again it deteriorated (psychologist who saw him for years put his problems with our relationship down, in part, to his guilt about Mum - wanted to love me as 'mother figure' as that what I was but couldn't as he had a mum, whether in contact or not) Contact started again about 18 months ago (she was clean) and after a few months of contact dss wanted to go back to Mum's-Grass is always greener syndrome! we were 'too strict' Mum has few boundaries etc. Against our better judgement but in the face of a very determined young man last summer we gave it a go. He ended up moving in with his maternal grandparents after a few weeks as Mum started using again. Imo It was not going brilliantly, he was in trouble at school constantly, in trouble with the police and generally left to get on with it. But he had a social service involvement who (apparently) weren't too concerned.

dss has, unsurprisingly, always had some behavioural issues but achieves well academically - he is a very bright boy. We had tried to have him statemented a couple of years ago as we (and his school)felt he needed more support than was available to him on SA+ but were unsuccessful as he was doing well academically. Whilst away from us he has spiralled out of control and been expelled from school and is now attending a behaviour support unit.

Child and family services had been working with dss for years before he moved out from our home. He puzzled them but was just about to be re-assessed for possible asd and although he was passed to the services nearer him when he moved, they signed him off (?!) and referred him for counselling, which was not followed up

But he has just come back to us, rather quickly as in was here for contact and we got a phonecall an hour before he was going home to say nan and Grandad had had enough.

He is clearly going to need emotional support. Dh and I are also concerned about a possible asd, as we were for sometime, and his educational needs. I know you will all be wondering why on earth we let him leave our care in the first place but that is such a hard thing to explain, it seemed it really was the only option at the time, it was as if we had reached the end of the road with dss. While I don't think this will be easy I hope that now dss has tried living with Mum, and seen that it wasn't what he thought it might be, he can stop focussing so much on where else he can live every time he doesn't like something dh or I do!

Personally, I am relieved he is back home. I am apprehensive about the future -dss is very difficult, which given the fact he has had such a troubled life and has poss asd is understandable, but still a scary prospect! We have 3 other dc's at home: my ds (13 also) Dh and my ds (3 also with asd) and Dh and my dd (1)

What I want to know is how best to move forward with help for dss?

GP for new referral re asd concerns and separate referral for counselling?
Behaviour support unit for possible statement application? Ed phsyc report?

Hope I have explained enough to make some sense of this!

OP posts:
Al1son · 10/05/2010 09:22

I just have to say first what a lovely stepmum you are. Your DSS is so lucky to have you to fight his corner.

This is all so complicated that I would think about asking for a CAF assessment. This will get everyone involved with your DSS sitting around a table together with the facts to hand and they will be able to discuss the right way to move forward. Your DH should get to choose who is the lead professional which will help you to get things going the way you think is right.

Don't be fobbed off about the ASD. It might be worth getting some books from the library about it or having a surf on a few websites about ASD or Asperger's syndrome just to see if you can identify a significant number of traits. If you think you can it might help your DSS if you show them to him. You have to be the judge of how he might react but it might help him if he gets an explanation for at least some of his difficulties. Having this information might give you a little more joy with an assessment process.

I'm some wonderful people with more ideas will come along soon. In the meantime I hope that you manage to get your DSS some of the help he needs soon and he manages to settle down in your stable and loving home enough to get a decent education and fulfill his potential.

imahappycamper · 10/05/2010 10:22

I should think making a diagnosis will be quite difficult because some of his problems will stem from all the things that he has gone through in his life.
I would try contacting child and family services to explain the situation and see if you can get his case taken up again where they left off.
GP could refer you to CAMHS.
Is he out of school at the moment or still at the BSU?

GoodDaysBadDays · 10/05/2010 12:20

Thanks for the replies and thanks for the positivity Al! I do try really hard for all my dc's but do feel I've let dss down hugely

imahappycamper - that sounds good advice and will try contacting CFCS this afternoon, have a Gp's app for today too.

My ds2 is going through the autism diagnosis atm. He has Gdd with autistic traits, so I have been reading up on it recently, and have been surprised at how much of it sounds like dss. I always put his behaviour and associated problems down to his difficult start and things he has had to deal with and while he obviously still has these issues I feel there may be two separate things to deal with

Have spoken to BSU today and He is still going to attend the same one, although it's 15 miles away it still covers our area. they're trying to arrange transport for him. think it should be good for stability and have spoken to them about ed pshyc report and statementing which they are happy to push for so keen to move forward with them

Someone I spoke to today (ds2's play therapist) suggested connexions youth support and young offenders support - they might be able to sign him onto a mentoring scheme. Any thoughts?

I feel a bit more in control this afternoon!

OP posts:
StarlightMcKenzie · 11/05/2010 15:15

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GoodDaysBadDays · 11/05/2010 18:04

Thanks for that Starlight

It does help, I know I shouldn't worry what others think but I do. I was quite a judgy person when I just had 1 little ds, now I have more and they have grown up and I've been a parent longer, I look back and realise I knew nothing then! But I feel there are probably a lot of others who do think the way I used to. Anyway that's for another thread !

Need to see another GP for the referral (was locum) but BSU are behind this too so it's a positive start.

OP posts:
StarlightMcKenzie · 11/05/2010 18:19

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