"It should be noted that where a pupil is identified as having a sudden and significant medical need which is considered to be likely to have a long-term, enduring impact on a pupil?s access to the curriculum, consideration should be given to a referral for statutory assessment."
"Completed applications must be sent to the SEN Caseworker designated for the school at the appropriate Area SEN Office for the attention of the Single Area Panel (SAP). (It should be noted that SAPs meet weekly, with the exception of the Christmas/New Year period.)"
"When a school receives either a final Statement of SEN, or written confirmation of FYS or SSM from Single Area Panel, they should contact SEN Finance to request release of funding. Please note: once a school is aware that the provision has been agreed, it is the school?s responsibility to employ teaching assistance at the level agreed by the Single Area Panel and to notify SEN Finance as soon as this has been done and the funding will be allocated from the date that the teaching assistant is employed and will be calculated to reflect the pupil?s level of attendance.
In all cases schools will receive written confirmation of the allocation and the Finance Section will adjust the school?s budget accordingly.
The allocation made will be calculated until the end of the current financial year in the first instance or until the end of the period specified by the SAP. " From this guidance document
Katymac This is the key to your question, I think, from reading the document:
Sudden and severe medical funding is not intended to be a long-term solution. It is not designed to provide a teaching assistant for your DD consistently throughout the year. The guidance document specifically says (following on from the guidance to consider statutory assessment):
"In the interim [emphasis mine], sudden and significant medical need funding is available for children and young people without Statements of SEN, for example, a pupil returning to school after a serious road traffic accident, who is now quadriplegic and dependent on adult support for a significant portion of the school day."
The whole point of SSM (from my reading) is to provide a 'sticky plaster', which is temporary support for a pupil who is suddenly and significantly affected by a medical condition. If the school consider that the condition will persist, and that as a result your child will need significant additional support, then they are urged to consider applying for a statutory assessment.
Equally, as the SAP meets weekly, it seems unlikely that you should have such big breaks between funding - the process is meant to be one of continual assessment. If the school is nearing the end of funding, they should be applying for further funding prior to this set running out. The guidance document makes it clear that with the exception of Christmas, the panel meets each and every week.
Sorry for such a long post, but I would urge you to apply for statutory assessment on the following grounds:
-Your DD has a sudden and serious loss of sight, which has a non-organic cause, and as such it is impossible to know when it may return, or with what quality, and for how long.
-This condition is relatively rare, so schools should not be expected to know how to deal with it, and if a child was organically blind they would be likely to receive a statement.
-The school is going to require teaching assistant time for your DD, and time to prepare resources for her to access the curriculum.
-As this is a relatively new diagnosis, you require a SA to understand the full impact of this condition on your DD's ability to access the curriculum.
-Without Statutory assessment, and indeed a statement of SEN detailing appropriate additional help for a significant portion of each day, your Daughter will encounter health and safety risks, fall behind academically, have a lowered self-esteem, and indeed if she is hurt at school you will sue their arse. (you might want to rephrase that last bit ).