Waiting for a diagnosis

[imahappycamper]

I know some people wait a very long time for a diagnosis of their child's condition. What do you think the NHS should be able to offer a child/young person and their family when a diagnosis is not immediately reached?
What should happen for all children and families in this position and are there specific groups of children who may need particular kinds of support, and if so, what? Opinions please.

Priority number 1: a sensory profile.

Just reaad Leonie's thread (active yesterday and this morning) and you will see why.

Thanks. Have read it.
Any other ideas- would a named person who gives support help?

Communication between experts, communication between experts and school, communication between experts and home. In a nutshell communication!

Treatment & support for whatever the current difficulties are regardless of dx.
Many children never get a "name" for their condition & parents spend many months, soemtimes yrs waiting & searching for a dx in order to access services, treatment & support.
If services didin't ahve such strict critera then less time would be spent on never ending assessment & repeat assessments etc etc & more could go on actually helping thye child.
Someonw needs to be brave enough to break up this cycle where more ££ are spent assessing & less on actual therapies.

I second anon for a long time we struggled with ot physio as etc as was told ds had Gdd and he might catch up so were going to do nothing

We now have a dx of cp same problems as he had before and all of a suddern the help ds has needed but never got before is starting to happen yet all that's changed are a few words

Support and treatment to meet needs. Simple as that.

What anon says. Treatment for the problems you actually have.

Also maybe some kind of counselling/advice. Children who are told that they are making their symptoms up can get traumatised and so can their parents. Some kind of support would be helpful.