ADOS today.

[BigWeeHag]

DS1 has pretty much had the verbal diagnosis of HFA confirmed. They are going to do another in-nursery assessment purely because I didn't want to take the dx. I could sense that they were a little frustrated.

Anyone care to help me paddle my wee canoe out of this river in Egypt? These were the sixth and seventh professionals to agree that DS1 has ASD. I think maybe it's time to accept it.

Onward and upward!

Hi - How did it go? My DS is to have the ADOS test too, to confirm a verbal diagnosis. I don't want to face this DX for my DS either, but so many people tell me it will be a positive tool to get him the help he needs, and the advice that I need, to help our family recognise his problems. Good luck.

Just remember that no diagnosis will change the child you know and love.

Just try to think of it as a key to the help he needs and a way to help you to understand and explain his needs a little better.

I feel better today. I stupidly got quite upset during the meeting, as I hoped expected the ADOS woman to say that he was fine. But I watched the assessment through the one way mirror, and I was able to be a little more objective.

The Ed Psych told me only 2 weeks ago that she did not see ASD, but this assessment was incredibly detailed, and so much deeper than just "does he line his cars up?" The Paed is going to speak to the Ed Psych and get her views.

They didn't talk down to me, and they formed a real connection with DS1, so I feel more confident about it. I think.

Bad times. I know that DS1 is fine, that he is the same little boy he always was and that I wouldn't change him for anything - genuinely, really wouldn't.

But keep having waves of ness and am quite tearful. Not helping that everybody and their mate knows everything about ASD and there is NO WAY DS1 has it, as (for example) "he didn't hit me when I ruffled his hair, no kid with ASD will let you touch them," "most 4 year olds can't do this/ that/ the other" etc etc ad infinatum, NOT helping, people, although I know they are (mostly) trying to. Oh, and there is nothing different about him, and if there is anything wrong with him, it is all my fault for failing to stop him watching telly and not providing good boundaries and being disorganised and WHATEVER. Anyway. /rant. Going to try not to talk about it to people as it is making me sad and angry, mostly, but I feel that I need to talk. Argh. Sorry.

A lot of us have been there. Why people think it is helpful to tell you "he is perfectly normal" is anyone's guess. You just have to learn to ignore it and find other parents in the same boat to sound off to.

Thanks Starlight xx