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Hyperacusis

8 replies

want2sleep · 29/04/2010 19:25

Ds age 5 yrs just been diagnosed with hyperacusis. I thought is was part and parcel of asd so shocked as seperate diagnosis. He has Sensory Processing Disorder also.

What therapy will help this as ds gets very anxious in circle time/playground even at night when quiet etc

I asked OT for AIT and Listerning programme but informed this was not her area of expertise and I must ask audiologist.
Seeing Paediatrician tomorrow will ds get help for this as really suffering.

OP posts:
flyingmum · 29/04/2010 20:27

I'm going to be teaching a chap with this come September so very interesting to hear what people say. I'd never heard of it before but when I looked it up I (and my long suffering husband) decided that I have it too.

rebl · 29/04/2010 20:32

I have got it. You do need to see a specialist audiologist. I have to say that the program I have been on has helped no end. I still can't stand some sounds and when I'm stressed I struggle to control it more. But if I can control the stress I find the hyperacusis not so bad. So I tend to avoid situations that make me stressed, which I can tell you isn't the way forward.

I would push to see an audiologist, its what your ds needs.

RaggedRobin · 29/04/2010 20:47

the audiologist i work with sometimes uses white noise generators like little in-the-ear hearing aids that give off very low-volume, persistent sound which can sometimes be successful in desensitizing hearing.

flyingmum: this is quite a nice factsheet on hyperacusis which may be useful for teaching staff.

Oracle · 29/04/2010 20:48

A child whose Mum is in my autism support group has a diagnosis of hyperacusis in addition to a diagnosis of ASD. The child has been wearing noise generators in their ears for almost two years. Mum was told that it could take a long time before any difference was noticed. However now almost 2 years later the child appears not to have benefited at all from the generators. This child has also taken part in the listening programme. Generally nothing has changed sadly for this child

lou031205 · 29/04/2010 20:53

Our paed says DD has hyperacusis, although I'm not sure if he is just using the term in a general sense. She is very frightened of lots of different noises.

I think I may have a touch of it, to be honest. When I am tired, or stressed, I find it very uncomfortable having to process the noise from the car fan, radio, DH talking to me, DD calling me, whatever all at once. When I complain & stress, DH looks at me like I have 2 heads

want2sleep · 29/04/2010 21:11

I just read on some site...that magnesuim and Vit B6 may help? So will ask Paed about this...but will push for Audiologist re: AIT and 'white noise' recommended by OT....dont know how that will happen as OT said to have a fan on at night? Is this right???

OP posts:
rebl · 29/04/2010 21:16

I have a white noise generator. Its like a fan noise or an untuned radio. It takes time to get used to it but it has worked for me.

RaggedRobin · 29/04/2010 21:22

i suppose a fan would provide persistent noise. there are some websites that generate white noise at various volumes so that you could perhaps build up volume as ds becomes more tolerant. i would imagine that this kind of therapy will benefit some but not others.

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