Hi, I have just had the DLA renewal forms for DS2 (6yrs) and I'm not sure what to do about the bits where it asks for information on contacting a health professional who knows about him.
DS has Dyspraxia and Hypermobility Syndrome and we currently get middle rate for him, the problem is when he was diagnosed the consultant gave us the diagnosis, referred DS to OT and then discharged him all on the same day because he said that there was nothing else he could do for DS.
He was then assessed by OT, who then when into school to put some things in place (pencil grips, slope etc) and then they referred him to a physiotherapist because he has no core body strength and then they also discharged him because they said they had put in place the help he needed.
He saw the physio for about 12mths (saw her every 12 weeks or so) was given exercises to do daily at home with DS, referred to the podiatrist and then she discharged him saying that he had improved but was still very weak in his body, but that she felt that he was getting bored with the exercises and wouldn't benefit from them if we carried on , but he would probably need more physio as he got older.
He sees the podiatrist twice a year for inserts in his shoes to keep his feet in the right position but has been discharged by everyone else even though he nothing has really changed. We feel like we have just been left to get on with it and now other issues are cropping up to. He seems very young for his age, he has devoloped a major aversion to loud noises and covers his ears and freaks out if there is music on in the car. He doesn't play with toys, but will sit at the computer watching videos of people playing Super Mario on You Tube (he is obsessed with Mario).
Sorry, this is getting long!!!! I've just realized I have 2 issues here. 1) what do I do about the DLA forms? and 2) who do I need to talk to about DS and the fact that it seems he's getting no help?