risperidone..........anyone have experience of this?

[bonkerz]

My Ds is starting on this tomorrow. He has been given it after months of considration on my part. His behaviour and anxiety has reached an all time high and control has been a major issue. he has started harming me and his sister and his self esteem is rock bottom.
He is due to start tomorrow night on 0.25ml so a very small dose and this is increasing over the next 4 weeks under supervision from doctor.
Im terrified for him. Will i lose my boy? will i get him back?
fear of the unknown for me! Ds is not bothered! LOL

Does anyone have experience of this drug? has it worked for you? any side effects?
TIA

it is relatively new for use in children but like i said it is relatively new research and very small doses.

There is a New England Medical Journal study on adults with ASD out there somewhere, several years old. It does make DS drowsy sometimes, e.g. if he's had a mixed night's sleep, his dose of Risperidone will send him back to sleep about 2 hours after taking it.... but if he's had a good night's sleep he's fine. Its useful to know, sometimes I give him his morning dose early if he's been up for a couple of hours, say at 5am instead of 7am and will get a couple more hours sleep out of him. It doesn't make him generally drowsy afaik. He did put on a lot of weight in the first couple of years but that was also partly due to "disordered" eating and less exercise than he gets now. Since his eating has improved and his food choices widened his weight has become "normal".

thanks davros, we have found he is sleeping quite heavily but he is also taking melatonin so we are lowering the dose of meatonin to try get him evened out IYSWIM. the morning dose hasnt affected him though.

Good afternoon!

i was taking respidral for 1,5 years prescribed by the doctor. After when was no psychological need in medication the doctor agreed to help me to quite respidral starting from January 2018. I used to take 2mg dose daily in the evening. The doctor suggested me to use 1mg, and in first 24 hours I had a strong headache and numbs in my right hand. On the second day of reducing pill from 2mg to 1mg I started felling my right hand is heavy. I continued to use the only 1mg of respidral for almost 4 months and after 4 months I drooped dose from 1mg to 0.5mg. I started to feel that all my right body side is heavy, the skin was sensitive (i started to get large bruises and marks, feel uncomfortable from touch or anything pressing).
After one more month, I quite respirdal fully and I experienced very sensitive skin and pain from any touch and press, even if I am just sitting, driving I had pain from chair pressing my legs. Also, I got a feeling of my eyes and tongue burning, muscle stiffness. This remained for 2 months. I have visited few neurology doctors and they did not have any solution.
In September 2018 I told about my symptoms to my psychiatric. He suggested starting using respirdal again. From the first pill in less than 12 hours I start feeling 95% normal and all of the above symptoms were gone except little pain in shoulder and heavy right hand. The doctor thought it is depression pain and he gave me pill Cyprilix. I did not get well and my doctor gave me Cymbalta and I started feeling pain in different areas like legs front and back, shoulder, eyes, and back. Mean I dropped to be only 60-70% normal feeling of the body.

I visited few doctors and they are not aware of the right treatment and they informed that they have never heard about such side effects of respidral.

I would like to know if any of any patient using respidral reported such cases and what is the correct treatment.

Could you contact your research team for the suggestion to my situation?

Thank you.

Best Regards,