Can anyone help?!Please!!

[chickensaresafehere]

Juat posted this on justaboutkeepingawakes post,but wondered if anyone else could advise??
My dd2,3.1,is completely non-verbal and at a recent com paed appt I had to stress that she was making NO progress at all & hasn't done for the past year.I asked whether she could have oral/verbal dyspraxia(after discussions with Phoenix),the paed said 'I don't know much about it'FFS,how frustrating.
Am pushing for more one to one SALT,but am doubtful,private SALT is all I have left.
No-one can tell me what is wrong with her & I am so very angry & upset,but what more can I do????HELP!!!

Hi the dx comes from salt not from a paed as it's not really something that paeds know little about

honestly she sounds so much like ds right down to the hypermoblity in thejaw and elsewhere
.have you tried calling the Nuffield centre direct or ican see if they can point you anywhere for help ds did not even make anything more than grunts no gggg mmmm baby babble etc

try asking saltnot sure if your dd is getting

btw it's Phoenix but name change

What about ICAN assessment? If you post thread on ICAN assessments should get some replies.

Oh thanks or the offer, but I am struggling getting through More Than Words and Wendy Lawson at the moment . I really want to read them but I find my mind wandering after 2 pages.

roundthebend4 - pushed the comm paed about more SALT,she is going to ask for 1:1 at CDC but wasn't sure if it would happen as SALT there has a large caseload plus she is going to ask for my old SALT to come to the home for monthly visits,but she needs more regular therapy than that.
Would Nuffield help me as I live in the NW??
Will look into an ican assessment.

justaboutwould be really grateful for that,do libraries stock the hanen books??

PS just checked out ican assessment,but it is from 4-19 yrs old,so would they not accept her??She is 3.1.

They do a 0-3 programme then the assessment from 4,so between 3&4 you are in 'no man's land'?

Hi chickens, I just spotted this thread.

I just wanted to say that at 3.2ys, my ds2 was still completely non-verbal. We struggled through totally ineffective salt, no-one could give us any reason/diagnosis for his lack of speech.

We went privately to nuffield (cost about £600!) and found it utterly useless for us.

We used pecs with him (seemed to be a very "visual" child, iykwim).

Anyway, lo and behold at around 3.3ys, he began to talk, and basically never looked back! It is incredible how much a lack of expressive (and to a lesser degree receptive) language had held him back.

He made rapid progress once he began to talk, and he is now a very bright and articulate 7yo, with absolutely no learning difficulties.

Your story reminds me very much of our own one, and while I don't want to send out false hope to anyone, your little girl sounds like she has so many positive qualities (probably more than my ds had at that age!).

I really hope that things develop in a truly positive way for you. x

homemadechutney thanks very much for your reply,I think that is the one of the most scariest things,not knowing what the future holds,wondering where we will all be in 5 or 10 years time and in the meantime everything is such a battle & we don't seem to be getting anywhere & no-one can tell us what is wrong.It's so hard,so a positive story like yours is great to hear,it certainly gives us hope.

justabout,sorry to sound dumb,but how do I CAT you with my address

Its ok read up on CAT now,I am enlightened
But heres my e-mail [email protected].

Do you know AvrilHeytch,I haven't read anything about that,nor has anyone told me that there is a link between hypermobility & speech delay.Where did you hear it??She has had piedro boots for the past year.

aviltech

ds is another one with hypermoblity to and affects his moblity and holding a pen