ds been sobbing in pain

[roundthebend4]

ok need some help advice here ds has had bad cramps spasms before but nothing like this ,We been for walk along river well i walked he sat in his chair most of though got out wobbled around few times

But towards end of walk he startd screaming and sobbing and letting me know his leg/foot hurt and i mean sobbing back arched and in real pain way more than his normal cramps .Carried on for about 30 mins and was at point of almost calling for help but no phone signal and noone around

hes ok now but the sheer amount of pain was in scared me tried emergency appointment but could not get

and advice what can do in the future .ds has dx of low muscle tone severe hypermoblity but is under investigation as his reflexes are over sharp

Bumping up as he had another one last night out of hrs dr refused do anything is it worth me taking ds to walk in centre or maybe contacting neuro on Monday

Am going send him on his day out with Sn club Today inbetween bounts he's normal selfvand truthly I need the break and do feel confident that they have experiance to deal with

Good idea - send him to the club, if he should happen to have another episode they will know what action to take. If they feel he needs immediate care they will phone an ambulance or a GP or tell you to do xyz

You, like me, struggle between what is acceptable pain for a child to cope with and what needs emergency help - I think a lot of parents do

Good luck & don't feel guilty for having a break - you need it

ds2 gets calf, knee & shin pain, mainly at night but it is worse if he has been v busy.
I usually just massage & rub until it has passed.
If it is worse than normal I would def spaek to physio, our phyio team have an acute clinic that deals with pain issues so maybe they could see you if they ahve anything similar in your area??

are you able to strech the cramps out?

no his leg would just not stretch had totally locked up and he was screaming with ypu could see in his face how much it hurt i felt really helpless

annon atm we have no physio due to move awaiting referals but have wait till were picked up by community paeds first that wont be till end of May early june
, ds does get similar to your ds but this was way above that wondering if worth calling neuro explaining what happened

if you have no physio, go to gp & ask for appnt with acute team (usually based at hospital) they deal more with short term acute problems rather than with long term conditions who is probabily who you are waiting for an appnt with.
It may also be a back door in to getting your own physio, as if they decide your ds should not be on their books they may transfer to community team - or whatever they are called in your area.

If you think it is a neuro rather than a muscular problem then give the neuro a call or maybe he can bump you up the list.

ty
Not sure what's cause of it the pain is musclar by way he goes stiff will call gp and demand emergency apointment otherwise 3 week wait for one Not that I have lot of faith in them

How is he now?

He's up and down but had to rush him to hospital. As he had a big fit out of the blue then another while was in there waiting be seen by paeds .so were in while they run some tests and to observe him in case of another

At least he is in the safest place while they sort things out

Sorry he is more poorly than he was

sorry to hear about the further fit. hope he gets thoroughly looked at and the hospital stay isn't too grim.