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Here are some suggested organisations that offer expert advice on special needs.

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40 replies

MiladyDeWinter · 09/04/2010 20:06

DS (ASD) has never slept through the night. Usually he is awake for a few hours when the rest of the household is in bed too.

He is almost three and we have been given Melatonin from the Paed which doesn't seem to dent it, but is worth trying IYSWIM?

We have had ten bad nights in a row. My Dad came to see me earlier and I was about to get a cab somewhere a bit later.

He asked why I didn't just walk there and I said that I was quite tired (had already walked around town to get DS to nap at around midday rather than at five or six) and that I had been up most of the night.

My Dad's solution?

(You will all be amazed at the originality of this suggestion )

"When you're at the doctor's just ask him for something to sort out his sleep"

Well if only I had thought of that!

I know he will never understand and must think that DH and I are very stupid, but he is an intelligent man himself! Surely he remembers that we have been to the GP several times about this even before diagnosis.

Anyone else had any genius advice lately?

OP posts:
claw3 · 10/04/2010 18:14

Dietitian on ds's extremely limited diet 'just dont give him the food he usually eats' yes im sure starving him will help him to eat!

GP on Autism 'dont worry he will grow out of it' thats a relief then!

LollipopViolet · 10/04/2010 18:37

"Ooooh, can't you get laser surgery?"

Erm, unless laser surgery fixes optic atrophy and nystagmus, then NO, I CAN'T, NOW SHUT UP!

Excuse the outburst

AngryWasp · 10/04/2010 18:55

'Why don't you ask for respite?' Ed Balls to me in the MN webchat.

MojoLost · 10/04/2010 19:24

my mum in law when ds was 2- "he's just a slow developer, by the time he's five he'll be fine"

troublewithtalk · 10/04/2010 19:49

This reply has been deleted

Message withdrawn at poster's request.

fanjoforthemammaries7850 · 10/04/2010 20:06

I regularly get from my FIL that "she is as smart as you and i" and she is "just having me on"..my DD is like a sweet 1 year old baby really, at 3.5...

chegirlWILLbeserene · 10/04/2010 20:18

My favourite is 'oh but he is lovely'

when you have explained the 'issues' to someone.

Yes thank you. I know he is lovely, he is mine, I think he is fecking brilliant. Doesnt mean he hasnt got LD, ASD etc (insert applicable)

That 'nice' comment always, always has the effect of making me feel like I am slagging off my child.

My DS also has severe eczema - someone I knew from play group pulled me aside with a very serious/helpful/constipated look on her face and said 'you know I have been watching DS carefully for a while. I think he scratches like that for attention'

Piss off.

fanjoforthemammaries7850 · 10/04/2010 20:19

My auntie also tells me I should "make DD normal"..

Thank God for my lovely MIL who told me she "loves DD just the way she is".

MiladyDeWinter · 10/04/2010 20:30

at chegirl - I hope you said that out loud!

claw3 we may have the same GP

OP posts:
mrz · 10/04/2010 20:30

Paediatrician "I've seen worse"

yes I'm sure you have ...

AngryWasp · 10/04/2010 20:36

pmsl mrz

From a Paed

Friend said 'Don't be silly, he's NOT got autism'.

Other friend, after we had been working VERY hard on request initiation and ds said to me 'I want biscuit', she said 'What's the magic word?'

justaboutkeepingawake · 10/04/2010 20:56

This reply has been deleted

Message withdrawn

MiladyDeWinter · 10/04/2010 22:12

yy at Einstein although I get Alan Turing a lot too.

As if DS is destined to save the free world.

OP posts:
lingle · 10/04/2010 22:21

The audiologist, after DS2 was given a completely inappropriate hearing test that demanded an ability to follow complex instructions, play games, and cope with unexpected loud noises, resulting in fear and withdrawal - faking sleep in my arms.

"Bring him back again in a month or so, but this time, talk to him about what is going to happen".

This, a child who had been referred for a hearing check because I said he could not then understand language at the level of "we're going to the hospital".

It still makes me angry and glad I had the luxury of being able to walk away from the whole lot of them.

lisad123wantsherquoteinDM · 10/04/2010 22:42

I love the "are you sure" comments too um yes I think her teacher, pead doc and SALT might know a little more than you!

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