sneaking back in here

[misdee]

still having little niggles with my gorgeous dd4.

17months old, hypermobility, multiple allergies.

still not walking.

still not talking. is babbling, and has one proper word kiskit(biscuit). the girl knows what she wants lol.

HV says they wouldnt be worried about her [not] walking, or the way she is attempting to do it, untill she does it and isnt moving right, or until she turns 2years old.

she doesnt move her left leg the same as her right. she is unbalenced. there arent any hip problems as been seen at stanmore.
her ankle rolls over and just doesnt support her well.

she see's the doc so often already and is under other various consultants for all her little issues. just dont know what to do. i think they have me down as paranoid.

and HV wants me to get my dd2 (7yr old) referred for possible overgrowth disorders as she was very shocked by how tall she is compared to her peers. so am going to sort that out soon as well.

she still has a tendancy to move like this as wellshuffle

this is what alerted us to the hypermobility.

I can't get that link - is it a bottom-shuffle?

a half shuffle. one leg in front.

Hi misdee, I know nothing virtually about hypermobility so will not comment on that. In terms of the speaking - I wouldn't be too worried about the one proper word, at this age, things like responding to her name/pointing by 18 months to show what she wants/is interested in is the important thing.

oh she is pointing-mad. everything gets pointed at. so thats good. pointed and grunted at.

video here should work. not sure if the last link worked.

right, will not worry about lack of speech. 4child doesnt need to speak with 3 older sisters getting everything she points for.

Paranoid or perceptive?

It's difficult at that age. Anecdotally (so of no use to you whatsover ) i suddenly know of 4 little girls who didn't walk till 20 months and one of those little girls grew up to be a mum of another late walker.

But so much better to alert to problems - I got fobbed off for ages about my ds (gdd) and feel we missed out on getting earlier help.

You could try to self- refer to Portage - google portage plus your local authority. If they seem sceptical ask them to at least come and do an assessment visit.

i'm trying not to worry. dd1 was my only other 'late' walker, but was 15months old when she walked.

sophs left leg is just not doing what it should. she wouldnt weight bear on it for ages, she shuffled with it forward when attempting to crawl. and now this. i cant describe how she moves it, but HV noticed it without me pointing it out. One HV says see GP for referral to physio/back to orthpaedics, other say no, not till she hits 2.

My DD didn't walk until 19 months, argh! I thought she would walk much quicker as her brother with ASD didn't walk until he was 16 months and I then put that down to part of his disorder/disinterest in things. Wrong! Obviously DH and I just have late walking babies. But she was also late to talk or communicate and I did worry a LOT about her development and that she was somewhat different to other kids her age, but not as much as DS had been. It wasn't until she was 2.5 that I started to feel she was definitely OK. People are likely to say that you "see" problems because you already know about them but I think that is BS. She definitely had potential problems that she developed through and I am far more likely to notice how "normal" most kids are, not the opposite.

My dd1 was a late walker (well 16 months ish), we didn't think anything of it at the time but now she's 6, looking back it upsets me that i didn't pick up on the fact she has hypermobility and low muscle tone. She was late to sit (she was 12 months) but talked very early. She was such a hard baby and i was more worried about her behaviour rather than her physical problems. She now struggles with physical activities but she tries her best, she runs slow and can't pedal a bike.

Her sister (ASD) walked at 10 months but didn't talk until she was 3.5).

If you feel there is a problem you need to keep pushing to get some answers, don't be fobbed off, remember she's your dd and you know best.

Hi
My dd walked at 20 months and has taken at least a year now to become 'fairly' steady. She has low tone in her trunk coupled with hypermobile joints including hips. She still runs very stiffly and oddly.

We were told at 13 months that she might not walk because of her low tone. However she is determined and we spent months and months holding her hands and she got there in the end.

Have you tried putting her in supportive shoes? Shoe shops were very reluctant to sell us shoes but they did help once we got them.

Babbling is a good sign - I have friends with los who are the same age and most of them just babble - no real words yet!

she has well fitted shoes from clarks. i just lied and said she was taking her first steps. this was well over a month ago.

am thinking she may need sturdier footwear though. she walks holding hands and cruises. my back is feeling a bit sore from stooping though

just to comment on shoes, if her ankles are rolling in then usually boots of some sort are much more supportive than shoes. If you think she needs refering back to physio then ask for it, don't do the wait and see if you are worried. They may be able to sort out more suitable footwear if they think it's needed.

thanks, will go back to GP after holidays and ask for referral back to physio/orthopaedics again.

I don't think you should worry too much about lack of speech but you should think about how much she is communicating with you in other ways (sorry if this has been covered already). DS1 was fairly late to walk at 17 months but we were not worried at the time - DS2 who is NT was about the same age though but again not worried although in this case was because he was communicating so well etc.

hooray for little flexiable ankles.

she got her ankle caught between two bits of wood outside the playhouse earlier. i thought it would be a fire bridage job, but as she is bendy i managed to manipulate her foot free. no idea how she got it in there as her foot and ankle is so much fatter than the gap. little trouble maker

misdee - try 'Babybotte' shoes - they have really sturdy ankle support and much better than Clarks IMO. We tried Kickers but the soles are too firm for dd.

Quite agree that hypermobility can be 'a good thing' at times. DD managed to fall down some stairs a bit earlier today but is so floppy she was only shocked, not hurt thank goodness!

thank you, will look for that make.

she only has size 3 feet, do they go that small?

would say look at my 2 late walkers but dont think that will help
She'll get there sweetie

SGK saw her walk/cruise yesterday and said she probbly needs boots. her ankles are rolling.

ds was not walking till 19m, hypermobility, he walked as if we had been supplying beer all day. will they not give you an appointment to see the physio. they lent us some pierdo boots to see if it helped, think he was about 2.5y at the time and the next day he wore them to nursery he walked all the way (first time ever) and without compliant, and stopped being in the accident book everyday! at 4, his back to normal footwear and attempting footie and trampolining.

she said as his so flexible he'll have to wait till his ankles strength.

will see gp and ask for physio referral. really dont fancy trekking back to stanmore if it can be done localy.

Hi misdee haven't had chance to read all the thread so sorry if I have missed anything but just wanted to share my experience.

DS1 didn't walk until 17 months either, he has hypermobility. He also didn't talk until at least 3. He did say words that I understood 'nap' for drink and 'at' for thank you but nothing anyone else would understand and most things sounded like 'doidle doidle'. At 3 he came on so fast and by the start of reception he was talking like the other children of his year.

He is now 10, superbright, and although he runs differently - due to hypermobility? - it isn't anything anyone else would notice and he is very fast so not a problem.

She will be fine

oh and he has lots of allergies too!