Massively impressed the sensory support team

[Katymac]

The school put me in touch with them, via a short meeting before a formal referral.

They just popped in to school to meet DD & see if they can help.

They are sorting out help for lessons

Then this week I phoned to chat about DD feeling 'lost' at school when her friends run off & leave her, and about DD losing her independence

They have arranged to see her at school next week and to see her at home the following week.

And all a formal diagnosis & based on a anticipated temporary condition

Very, very impressed

Whoops I meant without a formal diagnosis

She may have 'conversion disorder' but I don't think so & am still pushing for an appointment at Moorfields

It does seem odd to me too

I keep thinking about it & getting so pleased with them

great news. i hope they can sort out some useful support for your dd.

I knew the GP was wrong

I kept expecting them to say "You don't have a diagnosis" or "We can't do anything as it's temporary"

& they didn't

Oh that is some good news at last!

I think so too!!

Conversion disorder is not "all in your head" - which suggests there is some control over what is happening to you, or it is fixed by taking happy pills. It is an involuntary physical response of the body to psychological anxiety.

"Accused of", forgive me, sounds like it is a deliberately-brought-on, or feigned malinger's affliction; which it is not.

I'm glad you're getting support for your daughter both medically and educationally, whilst further explorations will help determine a diagnosis. We used the Sensory Support service for a few weeks in our case, and whilst it gave some immediate support for lessons missed, the person we saw found it hard to deal with the temporary nature of our daughter's condition, and suggestions were made about white canes and possible tutoring in a Special School if the situation persisted, with all the implications of permanent sight loss that this entails, and this was not helpful.

They seem to be quite happy with the idea of temporary - they are looking at a cane/stick to help her when she is out & about

Yes, it appears your disgnosis was wrong, and I'm glad it was finally sorted out for you but it doesn't mean it's wrong in this case. Obviously further exploration and tests are needed, but conversion disorder is real and does manifest in exactly this way as Katymac's case (pretty much identical to what happened to my child).

This case might be turn out to be something different as well, but it is the only case I have jeard of where it sounds exactly like what happened with us.

DandyDan was your experience that it was sporadic/intermittent from the start - or did you have total loss at first?

It was very limited initially (a yard); then total loss for a long period - weeks. Then occasional days of black/white vision as things improved. And similar periods nine months later with another bout of anxieties and stress.

Thanks