Has anyone else had this/heard of this?autism/trigonocephaly

[jussi]

Hi,
My 3 year old is being assessed for autism and basically I've noticed he has a ridge from the top of his head-where his fontanelle was,down to the bottom of his forehead. It basically feels like a bump on the top but then you can follow the line down.

I've googled loads and found out that this can be mild trigonocephaly where the sutures by the fontanelle close early meaning brain growth is restricted. Many children who have this have autism though not all and not all children with autism have this ridge.

Well, if a child has this apparently there is surgery called decompressive cranioplasty that they can have which in Japan,Ireland and France has shown that the childre's neurological problems were eased.Anxiety and emotional problems were the ones noticed most. In this country apparently surgeons don't like to do surgery if the trigonocephaly is mild as they don't believe there is any connection between the developmental delays and the head shape.

I just wondered if anyone has any experience with this and whether the condition is autism and one of the symptoms is the trigonocephaly or whether the condition is the trigonocephaly which then causes the autism.ie.what will my son be diagnosed with or will they totally disregard the connection at all?
I'm so sorry for the rant but my head is buzzing.
Thanks to anyone who has bothered to read this.

Hi, I have heard of this before but had not heard of it being linked to autism. Have you spoken to your gp? It can be quite obvious so would probably have been picked up before by a health professional. My two kids have a ting ridge in their foreheads but only at the top and if you feel for it. Can you see your ds' just by looking?

Thanks for replying.Ihave been to my GP who said 'I don't know' and then said we could have a skull xray for peace of mind.

I phoned the x ray department who said they don't do skull x rays and best thing is to see a paediatrician. Luckily next week we have our first appointment re the autism so will point it out then. You can't see it but you can definitely feel it. Well, my DS does have a full head of curls so would be pretty difficult to notice anyway.

I'm trying not to get ahead of myself and take each step as it comes.

Are your children affected at all by their ridge?

Hello!! I'm a mum of a 3 year old girl (UK) that has been flagged as on the spectrum for autism. She also has this ridge you mentioned on her head!! As you posted this a while ago I'm hoping you get this and can tell me where you got with this and if it was linked to the fusion or autism? I'm concerned my babies skull is putting pressure on her brain and it isn't autism at all... I can't believe NOBODY in the health care system had ever mentioned this ridge on her head! Even when measuring her head! Its like nobody knows of it until you as a parent Google it!
I hope you and your son are doing well 🙏 ❤ I hope you get this message xx

When dc was 3 people asked if he had autism. He had been in ICU with a terrible infection and then been prescribed meds which suppressed natural production of cortisol for about a year, he stopped growing in that year and when I started to take him off the meds he had a number of symptoms some of which looked like autism. When I looked into it I took the view it was more likely to be trauma relating to the illness and the meds - the symptoms can look very similar - and we did a lot of therapeutic work and he subsubstantially recovered.

However, he had (non autistic) stereotypies for years, which he can now control and it is possible that over and above the above he may have had other neurological things going on.

The reason why I am saying all this is because we went to a cranial osteopath for 3 sessions when he was nearly 4 and there was instantaneous quite significant improvement in relation to being able to climb and jump off things and just generally being happier in his own skin, impulse control, spatial awareness, energy - which were the main problems at the time.

I cannot recommend it as I don't think it is an approved therapy, we decided to try it and it paid off - if you are interested, it is worth looking into it to make sure you understand the full picture about it. My advice is however that if you do decide to try, talk to a lot of osteopaths first, and choose one which you feel confident has a lot of cranial experience with children.

Sorry I didn't answer your question, but just in case this helps I thought I'd share

*substantially