No weight gain for a year

[Caroline5]

Dd2 saw the paed. today, and it turns out she hasn't put on any weight for a year. They are talking about special high calorie milks (Pediasure??) and possibly a special tube straight into her stomach for direct feeding so as to make sure she takes in enough calories.

Didn't catch what this was called (gastro something), just wondered if anyone else had one of these or is on the special milks?? Dd is so fussy about eating, I'm pleased if she has one square of sandwich or one piece of pasta at a meal!!

The consultant also said we shouldn't expect miracles with her movement, he thought she would probably walk eventually but not to expect it before approx age 4.

So a bit depressing all round really, but nothing that I didn't expect.

Caroline my dd had to have these drinks for a few months last year after she had a bout of pnuemonia, her weight just dropped off her and she was a tiny little thing. She used to have 1-2 cartons of fortini a day and also a high calorie diet-have they talked to you about this? She did put the weight back on but she still looks slim, eventually we just stopped using the fortini. On the other hand my sister had to have proper feeds straight into her stomach through a button(these were done at night) I cant remember what they are called but they looked like beige/brown milk. My sister did manage to keep a normal weight with these feeds-she had cystic fibrosis.

About the movement issue-my dd has a global development delay like yours and professionals always seem to put her down even when we feel she is doing really well. Try to think of it positive and that she WILL eventually walk, that has got to be good hasnt it

Ahh mate - but like fio2 says, she WILL walk eventually. I know it's not the best most ideal thing in the world but hey, you've got a lovely little girl and life could be a lot worse aye! But good luck and lets hope it all happens before she's 4. PS Charlotte is teeny too, she's got some sort of thryroid problem and although she seems to eat well she's still only 18kilos at 18months and doesn't seem to be gaining any weight no matter what I do, bt oh well. Much love - Thomcat x

Thanks guys, sorry for sounding so gloomy earlier. You both always sound so cheerful, you are great! I'm just an old whingebag!!

By the way Thomcat, do you really mean 18 kilos?? Dd weighs 9.5 kilos at 2.1 years!

ha haa, no I mean 8!!! If she was 18 I'd have an entirely differnet problem on my hands! I'm rubbish at typing accuratley, i just bosh these posts out and send it without checking what I've written. PS you are NOT a whingebag, we are all entitled to feel sorry for ouselves now and agian. I was having the most blissfull holiday and was admiring my beautiful sleeping baby and suddenly felt oversome with it all and got all worried about her in the future and will she ever live independently and will she ever know the love of a good man!!!!!!!!!! i mean PLEASE! Where did that come from! That's the great thing about Mumsnet, we can come on here and feel sorry for ourselves now & then and feel better after hearing all the supportive posts, it's just the best, XXX - to you!

cheerful-me? echo Thomcat on this you are not a whingebag-we all worry about the future Im sure. Sometimes I feel really frightened for my dd but most days I dont think about it-too much. The trouble is when she sees the paed we are hoping hes going to say 'yes shes doing brilliant,blah blah blah' but in reality its she should be doing this and that and shes this far behind. Its horrible really, but then a few days later you just get back to normal, dont you?

sorry Im waffling

Thomcat she does have the love of a good man, her dad .

Ahhh, Lou - you're just the best! What a lovley thing to say, you've gone and made me fill up at work!! You're so right and I'll remember that if I ever feel sad again. She also has her 3 grandads(!), and 2 wonderful Godfathers and doting uncles, so yeah, thanks for that I'll never feel sad about that again, bless your heart!