Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

MRI

27 replies

fanjoforthemammaries7850 · 09/03/2010 20:03

Got a phone call today to offer us a cancellation for DDs MRI scan and lumbar puncture under general anaesthetic tomorrow, wasn't prepared as we were told it would be after mid-April. We got appts through for her EEG and brain stem evoked potential tests for 25th March and had been pleased they were doing the non-invasive tests first.

The worst bit will be starving her from 7.30 until the afternoon I think.

Does anyone have any experience? Am pretty stressed about it.

OP posts:
fanjoforthemammaries7850 · 13/03/2010 07:34

I wrote a big long post on train yesterday (I was on a course) and it wouldn't post so I lost it.

Thanks for the lovely posts.

DD is not ever a problem it's other people who are, generally.

I suppose I am just scared of her losing more skills. We would come to terms with it though I know, like others do. We already had to reevaluate our expectations, before she was 2 we thought she was very gifted and I had high hopes for her. Then she regressed and now I am just glad she is happy.

She is surprising me at the moment though, has started greeting people and hugging them lots, and has also started walking upstairs one foot at a time without holding on, suddenly in last 2 days.

I just don't know what is going on with her!!

Just packing to go away for a few days on a much needed holiday (not that it is much of a rest with DD!)

OP posts:
fanjoforthemammaries7850 · 13/03/2010 08:18

She just surprised me by writing lots of different letters and saying their names (very unclearly, her speech is extremely slurred).

She is an enigma!!

OP posts:
New posts on this thread. Refresh page