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Gp won,t refer

20 replies

Phoenix4725 · 09/03/2010 09:10

In a nutshell we moved and pct trust has changed to.the new gp will not refer ds to anyone till his notes arrive which could be up to 12weeks.

Ds was under physio,ot,salt,orthtics,orthopeadics,wheelchair services,and a generl devlopemental paed

only one we kept is ds neurologist

Anyone know how can speed them up have tried pratice manger but she says well that's the procedure forget about. Applying common sense!!!!

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claw3 · 09/03/2010 09:17

Just moved Boroughs myself. To whom do you want to be referred?

If its the physio, ot, salt etc, your GP wouldnt do the referring, the individuals ie ot, salt would do the transfer.

Phoenix4725 · 09/03/2010 09:44

Ah tried getting last ones to arrange but there not intrested ds did see ot and salt under school services but he has no school placement yet that's a whole other thread

have asked last paeds sectary but she was you got get new yp to rerefer to child devlopment team

guess this does not bode well for gp patiant relations if have to fight them from day one

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TotalChaos · 09/03/2010 10:01

could the neurologist sort it out for you? I would try phoning him via secretary - as he could at least send out a letter to GP telling him what to do iyswim!

claw3 · 09/03/2010 11:25

Its their responsibility whether they like it or not!

My understanding of the process is that you dont need to be referred, you just need to be transferred from one Borough to another.

They cant just discharge you from their service, without continue your ds's care. The way it should work, is that OT, SALT, Paed or whoever, write to the service in the new borough informing them of what your ds's needs are and they just take over where the others left off.

How will new borough know what your ds's needs are otherwise!

As TC says, if they want your GP to do the transfer, they need to write to your GP telling him what they want him/her to do. They cant just leave you in limbo. Although it is only usually referred back to GP, if the new borough do not have the service your ds needs.

Phoenix4725 · 09/03/2010 11:52

Am chasing ds neuro hoping he can help

just hate dealing with gps took me over 2 years to convince my last one that ds was not lazy .mind I did demand and get formal written apology

Claw been phoning like mad so far it's only wheelchair services that will do transfer .seems ot gone on maternity leave post is now vacant

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claw3 · 09/03/2010 12:06

Phoenix, its so frustrating isnt it!

Just dug out Paed transfer letter. It reads

I have seen 5 year 6 month old ds in my neurodevelopment clinic on 1st October. His parents have moved from x borough to x borough. I would be grateful if you could take over his care and send the family a follow up appointment.

I am enclosing a copy of my clinic letter and report for your further information.

Gives a brief history of development from birth. Followed by which other specialists he is seeing and what school he goes to.

He requires further paed assessment for his social and communication difficulties. Specialist speech and language therapist will see him in November.

He also needs x, y, z.

You could speak to the OT manager.

You could also complain to your old PCT and state that whoever is refusing to transfer and this is detrimental to your ds's continued care etc. They have to reply within 28 days, better than having to wait 12 weeks!

claw3 · 09/03/2010 12:09

Have to say it was amazing how helpful and efficient everyone became within days of me sending a complaint to the PCT!

Phoenix4725 · 09/03/2010 12:25

Well got ds paed secretary and the way it goes is ds new gp once notes arrive will write to old paed etc then once gets letter back new gp then refers in mean time we twiddle our thums not!!!

Yet dd paed is great he is contacting addenbrooks himself do direct referal to cut out the red tape

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Phoenix4725 · 09/03/2010 12:28

Yep think letter be my next step to seems I got the lot who do it by book and sod the childs needs

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claw3 · 09/03/2010 12:42

Phoenix, you should point out to her that until your ds is transferred to new Paed, he is still under their care!

Still i wouldnt waste time arguing the point, go above them.

You also might find, that your borough dont have the service, particularly if your ds sees a sensory trained OT, these are few and far between. I dont have a sensory OT in my new borough and have had to complain to new PCT about getting the service, as ds needs it.

Have you moved far from your old borough?

Even more reason not to wait for 12 weeks before finding this out!

Phoenix4725 · 09/03/2010 14:01

We moved into the next county yet since were on border most our care be at the princess Alexandra back in Essex.

Ah we need ot input for equipment and fine motor controls just hate dealing with jobsworths

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claw3 · 09/03/2010 14:23

Its a pain in the arse!

Ds's OT tried to discharge ds from their service, when there was no OT service in new borough to transfer him to. I found out and asked them what i was suppose to do, they told me to complain to new PCT.

What they forgot to tell me, was that if the service was not available in new borough, it is standard procedure for the new borough to fund the treatment and for ds to continue to be treated in the old borough. So sly!

So old borough OT has to prepare a report stating exactly what ds's needs are and discharge ds to non existent service in new borough, new borough then refer back to GP because they dont have the service. GP then refers ds's back to the old borough OT that he has just come from. What a bloody performance and waste of time and money!

I think its known in the trade 'as passing the buck'!

Good luck

Phoenix4725 · 10/03/2010 16:56

Looks like ds new health vistor is on the ball she came out saw us met ds took one look at some of the copied of notes I have and went ok I know very little about sn but I can see he needs help so is revering him direct to devlopmental paeds and salt etc

Yay for common sense that gp is lacking Ds neuro has also contacted them by fax to ripping gp a new one

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Phoenix4725 · 10/03/2010 16:57

Looks like ds new health vistor is on the ball she came out saw us met ds took one look at some of the copied of notes I have and went ok I know very little about sn but I can see he needs help so is revering him direct to devlopmental paeds and salt etc

Yay for common sense that gp is lacking Ds neuro has also contacted them by fax to ripping gp a new one

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claw3 · 11/03/2010 09:41

Thats good news Phoenix, its lovely and such a relief to meet someone with a bit of common sense isnt it!

The only problem i can see, is that HV will have to do a referral instead of a transfer and it will be treated as 'new' and you will go on the waiting list and you could end up waiting longer than 12 weeks.

Your GP's hands will be tied too without any info from previous professionals.

With a transfer there is no waiting list, they literally just take over where the last professional let off.

I think its shocking that previous professionals cant just write a simple transfer letter.

Phoenix4725 · 11/03/2010 10:24

Yeah hv has took copies some of ds notes that I have Did offer them to gp but he wanted ds notes on file from gp like there complete not!! we never saw him

she's hoping to get him to top as he has no school or preschool input since January

Ds neuro. Has faxed letter through from his pov

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sarah293 · 11/03/2010 10:26

This reply has been deleted

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meltedmarsbars · 11/03/2010 10:36

We hand-carried our GP notes for dd2 last time we moved, and I personally handed them in to the new GP.

I also got each service (therapies etc) to contact their counterpart in the new borough BEFORE we left the old one, and give me the contact details. Then I made the next appointment myself, so they all new we were coming.

It was complicated and I had a very long "to do" list for ages, but it was well worth the effort.

Hope your situation gets sorted out quickly. Hope you get a good GP too - makes a big difference!

claw3 · 11/03/2010 10:43

Your GP could make more of an effort and have his notes or at least copies of reports from professionals faxed across to him/her, so he/she could transfer your ds's care.

GP would be reluctant to transfer as it would involve reading through reports etc to establish what your ds's needs are. GP's like to have it already summarised for them, as understandably they are not experts in every field.

Its so much easier for old professional just to send a copy of latest report and covering summary letter to new professional and thats it, its sorted.

At least HV is on side, hope you get some results.

Phoenix4725 · 11/03/2010 19:39

Our new hp is crap but hey so was last one why we never saw them

sadly our move happened suddleny so no time to prepare with services .tried contacting old hp but they won't give notes would only far gp to gp

Riven

must admit has been a lot of hassle and headache and not done yet

But housewise it is so much better fingers crossed lea and Nhs be better

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