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Nursery says DS may be autistic, I really don't know and am feeling a bit lost, would appreciate some advice

47 replies

Sputnik · 07/03/2010 11:35

DS is 2.9 and started nursery in january, he goes 2 mormings a week and settled in ok. Then a couple of weeks ago he had a couple of tantrums at being told he couldn't play with certain toys. Next session was fine then last thursday he had what sounds like a massive tantrum because some other children disturbed his play. Apparently he was throwing things around and going absolutely wild for about 1/2 an hour. I have never seen him do this at home, at most he will throw himself to the floor and scream a bit, nothing beyond usual toddler stuff, I thought.

The woman that runs the nursery then told me she thought DS may be autistic, as some of his behaviour reminded her of 2 other boys she had taught who had been diagnosed. However, they were both 5-6 years old, as she used to be a year 1 teacher. She said not to worry for now, but to write down any incidents.

What concerns me more than the tantrums is that DS is still not really speaking, he does have some words, for foods, animals, bye bye etc, but just doesn't seem that interested in communicating. He doesn't often spontaneously point at things but will do it along with me if I point something out in a book or whatever. He often ignores you if you call his name or ask him to do something, though he'll come like a shot for meal times or to put his shoes on to go out.

He can however count to 12 and (bizarrely!) knows the alphabet and phonic equivalents as a result of following stuff DD is doing. He also makes a good attempt at singing along with songs and often copies words or other sounds he hears, as well as actions.

He just seems happy as he is most of the time, he plays happily on his own or with his older sister, who he copies a lot. He does make eye contact, and is also very affectionate, infact one of he few words is "kiss", accompanied by a big sloppy one! He doesn't have sensory issues beyond being a fussy eater.

I just feel at a loss really, he certainly doesn't tick all the boxes for autism, on the other hand we've had a niggling feeling something is up for a while and what the nursery said has brought it all into focus a bit.

The situation is complicated by the fact that I live in Italy, we speak English at home and the nursery is English, as well as DD's school. Which would complicate looking for any help out there. I am at home most of the time though so have been trying to engage him more, if anyone has any ideas for what we could do that would be very helpful.

To top it off DH is away at the moment and I haven't discussed this with him yet, prefer to wait til he comes back in 10 days. I have had no one to talk this through with and would really appreciate any help or support.

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takemesomewheresunny · 09/03/2010 11:23

Don't fill guilty. my ds did not have words till nearly 3, now at nearly a 1.5y later his language has come on hugely, still behind but can have a conversation and good understanding and can be understood. his still only ever been assessed by SALT, never had anything else to my frustration, but his come on well by himself (or as he would say - on my own). used to play by himself, but now has friends and plays well interactively. his been dxed as PDD-NOS/HFA.

I think the best thing for him was at 3 he use to have a 45min session a week. set up a little table for just you and him, and have a set of games prepared, e.g. jigsaw, colour matching games, number games, story book, maybe a construction game, or v. simple role play, games taking turns, finding objects, rolling balls to each other. just spend no more than 5min per game, show him what to do then do it together. if he throws things make him pick it up, your hand over his until he does, wait till things calm down and carry on. eventually he'll get it. it's a lovely time to spend together, but does need planning. there was a visual board, so he knew what games were coming up, then took that picture away when task done.

lingle · 09/03/2010 11:25

sounds good Sputnik. Be sure to tell her about the problems with understanding language.

definitely a great idea to get too busy playing with him to have time to worry! Hanen books will help you do this, and show you how to make playtime count.

Sputnik · 09/03/2010 12:19

That is encouraging Takeme, this is the kind of stuff I have been doing. In fact we were doing it before but I realise we need to step things up a bit.
Think I'd better order the Hanen book before I run out of ideas though. Does anyone know which book would be better for working on receptive language?

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cyberseraphim · 09/03/2010 15:17

More Than Words is best Hanen book if you suspect that child has more serious issues than short term speech delay. It covers a wide range of ability though so don't be put off by that !

Sputnik · 09/03/2010 16:11

Still no joy here, the number I was given wasn't a SALT after all, she referred to someone else who was but has a full caseload at the moment. She gave an email for someone else, fingers crossed.....

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lingle · 09/03/2010 17:19

oh how annoying. At the end of the day though, it's going to be you and a good nursery that makes 90% of the difference.

I can see what cyber means about MOre than Words. It includes all the stuff on sensory problems and visual learning which for my DS2 was absolutely critical.

Later on, you may also find the DVD "teach me to listen and obey" helpful. It's available from a speech therapist who runs a very detailed website at www.teachmetotalk.com. "Teach me to Listen and Obey" is useful because it focuses purely on receptive language issues. Bizarrely, there is a dearth of resources on receptive language problems.

justaboutkeepingawake · 09/03/2010 19:27

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Sputnik · 09/03/2010 20:42

Lingle, I was just looking at the teachmetotalk site and thinking about the DVD, what seemed like lots of good info on there.

I suppose I would like professional involvement really to find out whether it might be autism or a language delay, or indeed something else.

Justabout, great to hear you are making progress, and it is really encouraging to hear of others' success.

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justaboutkeepingawake · 09/03/2010 21:09

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justaboutkeepingawake · 09/03/2010 21:10

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lingle · 09/03/2010 22:14

"I suppose I would like professional involvement really to find out whether it might be autism or a language delay, or indeed something else"

yes understand that, particularly in relation to the "or indeed something else" - obviously it's vital to make sure there's no underlying medical condition.......

I've been hoping a mumsnetter I know who's from Italy would find this thread but she hasn't popped up yet. She has a DS with an ASD dx - they live in England - and from what she's told me they wouldn't call it that in Italy.

I think the distinction between receptive language delay and a certain kind of language-led autism is a cultural/political line really, varying not only from country to country but from doctor to doctor - it's not a sharp medical divide. So even if you are advised it's just a language problem in Italy, you'll still find resources aimed at kids with a UK/USA asd dx to probably be the most useful materials.

have you been able to speak to your DH? I'm just thinking that this is going to be a shock to him when he gets back and when you're the mum doing the primary research it can be a challenge to keep the DH on board and work together.

Sputnik · 11/03/2010 09:55

I think I'll tell DH about tracking down a language therapist then the rest when he gets back next week. Then we'll start on the "medical" (for want of a better word) approach.
I know he'll feel the same as I do so not worried he'll be unsuportive, we've discussed our worries over this in the past but always thought DS was on the verge of a breakthrough so left it a little longer.

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Sputnik · 11/03/2010 10:04

Oh and update on the speech therapist, she is still not sure if she can take us on but we have exchanged a few emails and she says DS shows lots of encouraging signs judging by my description.

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justaboutkeepingawake · 11/03/2010 13:30

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Sputnik · 23/03/2010 20:40

So, update on DS, I have managed to track down an english speaking speech therapist, we met her very briefly on an informal level, but she confirmed very quickly that there is a problem. She seemed really lovely and we are really lucky to have found her, she specialises in pre-schoolers and only just arrived here so doesn't have many cases.

We are actually seeing some progress already with stuff she told us to try on friday. We have got him naming some objects and he actually asked me for a banana, which is great but on the other hand he really is behind and should have done that kind of stuff long ago.

We also got to see a pediatrician today, he also said there is definitely a developmental problem and refered us to a neurologist. He said a lot can be done though. Plus he gave us a referral for the speech therapist so we can get going on that. DS got pretty upset when he did the physical examination which according to him was atypical for his age and could cause problems for the hearing test, he said he might have to do that under sedation.

It's hard not to feel really anxious about the whole thing tbh, I feel like I'm setting out down a long long road without even knowing the final destination.

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RaggedRobin · 23/03/2010 22:42

it's understandable to feel anxious as there are so many unknowns. it does sound as though you are already setting up some good support for your ds at an early age, so there is a lot of hope. he is still your lovely, affectionate ds. i suppose that none of us really knows our dc's final destination, all we can do is support them and enjoy them.

we have never managed a hearing test either as ds got very upset.

great to hear that your ds is already making progress with the speech therapist and your input.

notfromaroundhere · 23/03/2010 23:48

I'm glad you've manage to find professionals who are listening to your concerns, but can very well remember the sinking feeling of those concerns being shared by the SALT for my own DS1.

Very positive that you are already noticing progress from putting into practice the SALT's advice. I think with hearing tests it is up to those administering them to adapt to the child - I think I have been very lucky with both tests my DS1 had as they went out of the way to make it a fun experience for him.

Totally understandable that you feel anxious - particularly when you are at the beginning stage of trying to pin-point what you should be doing to help your DS, who you should be seeing, waiting for the appointments, decoding the jargon etc. This board has been invaluable to me and I'm sure you'll find it the same.

lingle · 24/03/2010 11:12

wow, you have really done a lot in a short time.

I started "work" when DS2 was 2.9 too. It's not too late.

We all share your anxiety I think.

Sputnik · 24/03/2010 15:46

Thanks everyone, it's really good to have support from people who've been through this stuff already.

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babyjane67 · 26/03/2010 17:15

hi ive just taken the footpath online test&it says my dd is high risk.i really wish i hadnt taken it now!!
i only took it really cuz im worried about her not waliking yet.she be18months on sun.i havent said a word2my dp yet who i think will be horrified i even took it.
im in shock really wasnt expecting that result tbh.not sure what to do

DelsParadiseWife · 26/03/2010 17:27

babyjane

Can you create your own thread? You'll probably get more responses that way.

babyjane67 · 26/03/2010 22:39

ok thanks will do that

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