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SN children

Here are some suggested organisations that offer expert advice on special needs.

Just awaiting diagnosis... probable Mod LD and maybe ASD, anyone out there....?

28 replies

signandsay · 03/03/2010 19:42

Hi, this is a bit tentative, as I don't usually do internet stuff, am mum of gorgeous 3yr 3mth little boy, have been biting the bums of professionals for last 18mths about son's issues, (lack of speech, behaviour etc) been patted on head lots! have persevered, (and as SW myself knew which bits of legislation they were ignoring!)
We have had 3months of assessment and go on Friday for 'Ta da!!' Diagnosis...
think they are coming back with mod LD and 'some autistic characturistics'. Don't mind lack of clarity re ASD as I think biggest issue is the LD and speech delay, (he has 3 words, although has lots of signs, about 130 so far, as I am fluent signer from work with D/deaf people).
Am finding they don't believe how much he is signing, (cos he doesn't sign with them, partly I guess because none of them are fluent, argh!!)
Feeling little shaky, with my sensible head I know diagnosis doesn't change him at all and may open doors to funding, but it kinda makes it real doesn't it... I seem to spend all my time making sure everyone does what they have agreed to, are supposed to, and being cross at stupid things family and friends say that time to just think about what is happening is in short supply.

Also husband, (who is good bloke) is physically disabled, so am also caring for him and trying to help him overcome difficulties his disablity causes with his parenting of son..

Blimey that's a bit of a tale of woe to send out into the ether isn't it, eek!

Just wondered if anyone was out there...

OP posts:
cyberseraphim · 07/03/2010 13:55

I agree it is a fine line with professionals but it's a game of chess not all in wrestling. I try to ask a professional to explain a technical term even if I know what it is . They may then be more receptive to your input if you have shown some initial deference. I think they do tend to expect parents to be confrontational and may file it all away as 'denial' and take no notice whatsoever.

waitingforgodot · 07/03/2010 14:40

You need to pick your battles as sometimes your energy is best spent doing something more constructive. Agree with cyber to view it as tactical. Cyber, I hadn't thought about the confrontational=denial but thats so true.
Hangover-fun at the time, not fun now. Enjoy the rest of your Sunday ladies

signandsay · 07/03/2010 19:23

Def pick your battles, (always say that to service users I have been SW/advocate for.) Like the idea it's chess not all in wrestling, will remember that!
thanks

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