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Hello just introducing my self

11 replies

vivismum · 28/02/2010 23:27

hi im new on here and want to say hi i have a beautifull little girl who has just been diognosed with hemiplegia on her right side this is a form of cerbral palsy just wanted to say hello and talk to any other mums who have children with simular chalanges as i am a single mum who feels a bit on her own with all this
So feel free to say hi

C

OP posts:
fnm · 01/03/2010 00:41

Hi, hope you are ok.
My DS was dx last year with r-hemiplegia, it is a terrifying time but it does get better. Big hugs.
How old is your DD? You will meet a lot of lovely helpful people on here (this is where i learnt about my ds's hemi before the dx) with fab advice, if there is anything you want to know ask away.
I am still coming to terms with dx hence still searching the net at daft hrs of the night but we all deal with things in our own way.
Has your dd been referred for physio/ot/speech therapy?

Phoenix4725 · 01/03/2010 05:44

Hi and welcome know theres few mums on here with dc that have Cp .

I have a ds whos 4.7 with lowmuscletnpe /hypermoblity and verbal\oral dyspraxia but a allround pickle

I founbd this board so usefull and full of advice and friendly people

Phoenix4725 · 01/03/2010 05:45

oh i to am a singleparent with 4dc

badkitty · 01/03/2010 10:11

Hi I have a little boy who is 14 months with quad cp. How old is your DD? It must be hard to cope with the diagnosis on your own, I hope you are ok and have support from family/friends - if not you will get it through here!

glittery · 01/03/2010 10:17

hi, another single parent here!
i have a nearly 6 year old son with Quad Dystonic cp.

Mouseface · 01/03/2010 12:14

Hi

Welcome! You'll find plenty of advice, laughs and friends here. No advice on your DD's condition but I have 10 month old DS with Tetralogy of Fallots, Pierre Robin sequence and a wide cleft palate (amoungst other things....) they're more mechanical issues than anything else. He doesn't eat and has been tube fed his whole life. I have a DD and DH too but once was a single mum so know how you feel on the loneliness front!

You'll find lots of support here

corkyOrorky · 01/03/2010 14:36

Hi vivismum

I have a 2yr old little boy with diplegic cerebral palsy.

There is a wealth of knowledge and experience on here.

It's full of advice and friendly people. Welcome.

WasUnderThirthy · 01/03/2010 14:46

Hi and welcome

My dd (2.7) has mild hemiplagia and gdd. Just wanted to mention another site that I found helpful, especially for the input of adult living with hemiplagia. www.hemihelp.org.uk/

anonandlikeit · 01/03/2010 15:59

Hello & welcome, i have 2 ds's the youngest has mild CP, (spastic diplegia) & autism.
This site is full of helpful & lovely people x

vivismum · 01/03/2010 21:33

gosh what a freindly bunch of people on here right to answer all the questions raised my dd is 16 months old and we first saw a doctor at 10 months , after months of saying i dont think this is right i saw the consultant last november and we are now waiting for results from mri and eeg but not herd anything so think will get results from consultant when we see him she has ot and physio pklus there is now a group session for us to go to.

i have found the hemi help site not looked into it much yet

just got to get my head round the life story form that is the DLA to fill in think i am going to have to admit defeat with the form and get help as i just dont know the wording for it all. ( sorry about spelling not my best skill)

OP posts:
corkyOrorky · 03/03/2010 14:40

There is a website called cerebra that gives good guidelines for filling the form in.

I got help from a benefits advice worker at my local Surestart childrens centre.

She pretty much filled it in for me tbh.

Good that your dd is getting physio and ot already.

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