language

[pokhara]

i am having one of those weeks were im sp pissied off and cant get my head round thins, posted yesterday and day before re ds starting school sep and head teacher not supporting us etc.... well still ranting on even in ym sleep, just have to type in somewhere before my brain explodes with fury

SO IF A CHILD HAS JUST EXPRESSIVE LANGUAGE DELAY THEY CAN GET HELP IN A SPEECH AND LAGUAGE UNIT (IN MY AREA ANYWAY) BECAUSE OBVIOUSLY THEY NEED SOME EXTRA HELP. BUT AND I SAY BUT IN HUGE CAPS, IF A CHILD HAVE THIS AND COMPHREHENSION DELAY WHY DO THEY NOT NEED ANY HELP, IS THIS JUST ME OR WHAT, AM I LOSING THE BLODY PLOT.

Seen HV this morning told her about struggle with schooling and head at pre school, she said well i think they need to lethim go to ms school watch him and he might improve in the next year, even though i explained that in 2 years the pattern is the delay is getting worse.

you dont have to reply to this, dont fe you have to, just need to write my frustrations down somewhere,,,

I think that when the expressive delay matches a comprehension delay, then there is a different concern. Cognitively, the child is behind in their development in that area,.

When a child is able to comprehend far more than they can express, therapy can help them verbalise at the level of their comprehension.

and what if that takes years and years,

This attitde of "watch & see" makes me so furious. WTF are they going to watch for when they obviously have no understanding of language disorders in the first place ? Sorry, nothing useful to add but just relaly angry on your behalf.

Language units seem to be a complete postcode lottery. The SLT at Dd's unit told me off the record that they actually give preference to kids with receptive disorders as they struggle so much in mainstream. Hard luck on the kids who have just expressive language probslems, but it's assumed they can be left in mainstream and at least they will understand what they are told to do even if they achieve nothing

It's so bloody depressing

I suppose what I'm getting at, is that speech and language units are often for 'pure' language problems. If a child has difficulties in other areas (GDD, ASD, EBSD, etc) then a SAL unit isn't the best setting for that child, because they have more global needs.

agreed, th paed says he doesnt hink ds has autism but has alot of tendencies and will prob be on the spectrum, er, am i missing something there that dont make sense, i just want to know from them is there a reason for this delay ie, asd etc or if not then do somethin more to help him. dont mean asd kids shouldnt get more help, but mean that they will always have stugles and slowly come on. sorry if worded that wrong, hope not to offend

My DS is now in a language unit two mornings a week after much complaining and moaning to salt offices that nothing was being done about his speech delay exp/recp.
Language unit know DS is on the spectrum and they are happy to have him as long as he has no formal dx. Actually had a bit of a scare back in the autumn as Salt office and SEN panel found out that DS was being put forward for asd dx assessment with Cahms and i was told by SEN office that they wanted to review his place there and then ...but in the end the lady i spoke to had made a mistake and they didn't.
Salt did say they have had other children like DS before and that they did well in the setting (as does DS) but the SEN panel reviews their place if and when they get a dx, and if it's asd... they can't stay!! So if tomorrow DS gets his formal dx, then they will kick him out even though he is doing well. it's all wrong!!

see ds has no problems with asd/behaviour/GDD
etc in fact non verbally hes within normal range but he does have the receptive delay and Sli ,and its agreed his problems are pure language disorders not delay and there lies the problem its to long term help thats needed

wehave struggled to get anything more than half termly salt of 1 hr and his lsa well she spent more time helping others as in her words she was way out of her depth with ds language issues was fine with his physical problems.

Unit does not want ds as sever despite me getting Lea to agree to speech provison in stateemtn , Sn school not right

"i just want to know from them is there a reason for this delay ie, asd etc or if not then do somethin more to help him. dont mean asd kids shouldnt get more help, but mean that they will always have stugles and slowly come on. sorry if worded that wrong, hope not to offend"

Oh pokhara - I think that will offend slightly, to be honest. Children with ASD are no different than any other children with SN. They can be as mildly affected to the extent that their SN only become apparent in a very few situations, or they can be profoundly affected, or somewhere in the middle

It is very hard to be rejected for help when you feel that your child needs it. DD1 falls over ALOT. She trips, stumbles, struggles with stairs, loses her balance, etc. She has slightly low muscle tone. It is so hard to hear a physiotherapist saying they won't take on her case, because "there is nothing wrong with her legs". Everything inside me screams out "Well tell me why she is tripping, stumbling, losing her balance, bruised...." But it doesn't mean she doesn't need help. Simply that they don't think that physio will do anything for her.

In the same way, it is possible that the SAL unit is recognising your DS has issues with language, but feel that he has other needs also.

god its so frustrating, one minute telling us they too delayed for a unit but on the next hand ok to go into ms, apparently ds wont get a statement , head thinks, because he is sociable.

why arent kids with asd allowed in the unit, its as if saying well they got autism nothing can be done at all to help them we want nothing to do with them, its disgusting. Now im thinking that maybe the salt thinks ds asd but hasnt said anything cos paed not think so, she is the one who did assess of ds recently andshe is the one who works in our local unit.

just feel like crying my eyes out, cos paed doesnt think its asd, but says he will be on spectrm, well thats no help is it, but then still no help even if its not asd. my ds is so angry and aggressive and has so many problems with sensory, ie lots of people, lots of sound, being on buses, and with no help he will turn out to b a 10 year old who attacks his mother, im so frightened and i want to help him.

i noticed that this week most of the posts on mn are about very similar things, statementing, must be the time of year when everyone is trying to get help but lea not doing anything to help

Forgot to say, that some children with ASD are actually far ahead of their peers academically, and have superb vocabulary, etc.

ah but then see i have ds that would find some of the children with asd while also knowing that not all dc with asd are the same
frighting so can kinda see there point there

and yes if took of my mums hat can see why they feel that be better for dc spend couple of years in unit then return to Ms , but thgen ds not going to improve without any intervention either even if he will never be a proper talker so im going to take Lea to tribunal and try forcing there hand with giving ds the help in a unit even thgough long term

lol trouble withtalk we switched Lea and think my reputation came with as new lea are prompt about returning calls/emails and there full aware that when i said tribunal I mean it so am hoping they pull something out hat

I think some of the issues are to do with the 'marketing' of Units and SN provision - which often use vague language to describe the needs of the children they accept. The LEA decide what the units/provision are actually for, but do not openly disclose or discuss the criteria for entry. If a school is not right for whatever reason then it's not right but parents have to run around trying to find out who does what and are made to feel silly or 'in denial' if they opt for something that cannot meet their child's needs. More honesty is needed- even if it's not what we want to hear.