Complex social communication disorder

[Ilona33]

My 4 years old daughter was diagnosed with complex social communication disorder recently. She doesnt talk much or uses a lot of baby language, she tip toes sometimes (although not as much as she used to), she finds it difficult to visualise things and understand things, she puts her hands to her ears when she hears some sounds (not as much as she used to) and she freaks out from sounds, sometimes she doesnt understand people`s emotions ( IE: cry- why someone cry). I have taken her to health visiotrs, doctors all her life and everytime instead noticing the problems they just brushed it aside. I feel let down. The health professionals known about her reactions, tip toeing, her fear of sounds and inapproprate talk, behavior, yet nothing was done until recently. Even in play group while the other children played together, she would not interact, she just played on her own. Does someone has similar problems? My daughter currently has speech and language therapy every Tuesdays for 4 weeks. Is there anything I could do?

I feel so fustrated most of the time. I told in the family whats going on with my daughter. Their reaction was; oh thats terrible, but dont tell anyoneORits probably nothing shell get over it. None of them really supportive of what we really going through and until we get a more specific diagnosis I doubt they will be any help at all. My daughter shes lovely and funny, but she has some difficulties. I really need to talk to someone with similar experiences.

What do the speech therapists say ? Is there any feedback? What information were you given about the initial diagnosis ? Is it suspected that it might an ASD disorder ? Unfortunately families are often hopeless when confronted with a child developing in a non typical way (because they don't want to believe it etc). They may get better if you make a point of showing them any written reports you get about your dd.

Has your dd's speech therapist given you any tasks to do with dd? They should be giving you ideas to work with dd at home. This book It Takes Two To Talk has some very good ideas on how to help your child with social communication. It is expensive, but perhaps you could order it through your library. It sometimes comes on ebay too.

We had the same problem with family not accepting our ds's communication difficulties. they have become more understanding as i have provided them with more information.