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Would this change the dx?

3 replies

fnm · 14/02/2010 23:07

Hi everyone

DS has a rare brain disorder, from this he has right hemiplegia. Whole of right side affected.

For a while now we have noticed his left hand sometimes seems a little awkward (sorry but not quite sure how else to describe it).
I mentioned it to his physio a few wks ago and after looking back at a few recordings of ds she agreed with me. but didnt really say much else. He can use it great, he eats, uses a cup, draws (although quite lightly) but sometimes he holds it a little stiff when reaching out for things.

Anyhow, my question is do you think this will change his hemi dx or will stay same? I am pressuming the physio will report back to our paed. Not much was said really, just the usual wait and see kind of thing but as usual since this finding, the questions are popping up in my head

So far his left leg seems ok. He is now 2.

Thanks for reading.

OP posts:
mrspoppins · 15/02/2010 05:31

Ask for fresh consultation with your Paediatric Doctor to ask the questions you have and ensure that the awkwardness in his hand actuallu was passed on. lots of love

mrspoppins · 15/02/2010 05:32

Ask for fresh consultation with your Paediatric Doctor to ask the questions you have and ensure that the awkwardness in his hand actually was passed on. lots of love

anonandlikeit · 15/02/2010 09:53

Not sure, my ds2 has mild CP Spastic diplega (& asd) which means the legs are effected.
Although his fine motor skills are poor & his upper body is far floppier than it should be with low tone.
But becuase the impact on him from upper body involvement is so minimal it doesn't warrant inclusion id dx.
It hasn't effected the support he has received as physio & OT always look at the child rather than dx.

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