Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Hallelujah! DS3 has been cured (apparently)

14 replies

BethNoireNewNameForPeachy · 07/02/2010 23:18

Letter from SLT, ds3 now has age appropriate language.

I was quite surprised being as it was done in November and I never bloody noticed!

Now I know it has improved but surely the fact that nobody can bloody understand most of what he says should be considered before issuing such descriptions?

They used to do loads of tests covering all sorts of things from receptive and expressive to pronunciation, etc. Now they did the Receptive and Expressive, he came in very bottom of average (so they got him on a day when he wasn't having attention issues or a massive absence then) and they didn't even look at the stuff that we really struggle with.

I willof course be sitting him down tomorrow and telling him not to perseverewith the SLI any more as we now know its not real.

Prats. Anyone would think there was a budget coming up.

OP posts:
TotalChaos · 07/02/2010 23:20

get the bunting out eh. yes, I had this last year with DS, apparently he is one of the SLT department "success stories"

BethNoireNewNameForPeachy · 07/02/2010 23:26

We've had it with EdPsych beforebut years ago, you forget.

the first line is 'DS1 ahs no attention issues'

Which then is why school and Psych aredeciding whether an assessment for adhd is needed I guess.

In my fantasy life I wil lwrite a letter toschoolasking if DS3 has been replaced by that naughty by who sometimes turns up looking just like him,sits in his classes and outperformshim on everything. I have yet tomeet him but IIRC he goes by the name of Billy Bugger-My-Budget-Overspent.

In relaity I will swear/giggle with DH and a fewothers who know him then file away under waste oftime.

OP posts:
SparklyGothKat · 07/02/2010 23:30

DD1 had age appropriate language at 6, she was discharged, and re-referred last year. She is 9 now, still gets words mixed up, doesn't use the correct nouns and pronouns, but hey she was age appropriate for 2 years??

lou031205 · 07/02/2010 23:32

Our paed wrote in his latest clinic letter that he envisaged that DD would go to mainstream school with support provided by her statement, and that he personally feels she will settle beautifully into the school environment.

It arrived 2 days after her final statement naming the special school.

She spends her time in clinic turning on taps, climbing on his clinic bed, stealing his hand gel (attached to his belt ), emptying his glove boxes, stealing his stethescope, etc. How that equates to settling beautifully, I've no idea.

BethNoireNewNameForPeachy · 07/02/2010 23:34

Only those who know him can understand him 75% of the time,his sentences are very poorly structured- Me Arry wan bikkik would be I'd like a biscuit please. he can't make severeal letter sounds at all,such as S.

he ahsn't been dischrged yet, in fact I saw them a week after the assessment and no mention was amde of it, but how could a child who is so called age appropriate be getting help then when so many others get nothing?

Oh I know

It'sbecuase it is all

BOLLOCKS

OP posts:
BethNoireNewNameForPeachy · 07/02/2010 23:35

PMSLLou

The wholelot said ds3would cope with MS,he'snow in SNU after it fellapart.On Friday the TA who handles the asd kids met him (she is ds1's TA), I told her we had been advised to send hhim there. her answer? no chance.

She's right.

OP posts:
Macforme · 08/02/2010 07:27

Ahh the SLT discharge....
Seriously they must be the most amazing of all the professionals (using the word in it's loosest sense!) cos they seem able to cure so many of our children!

Ours has just discharged DS2. He's 12 . Non verbal til 4, very delayed etc. Now very verbal but with many speech sounds missing, very slurred due to hypotonia. Has ASD and understanding patchy. Strangers can't understand him. But according to the SLT he is FINE. Ok his own relatives struggle and have to ask him to repeat himself constantly, but he's FINE. Ok that's ok then..he'll just be an adult that no-one can understand...Tossers
If you can face it... give it a break then demand reassessment. It's fun to annoy them like that

BethNoireNewNameForPeachy · 08/02/2010 10:21

Oooh your ds sounds like ds3! He was non verbal until4and that soundsdevelopmentalllike the path he is on,also ASD. He has facial scarring around his mouth from a fall at schoolbefore they agreed to SNU and there have been hints that is linked, if thatso we have to accept it as it isbut I suspect the refusal to say it is comes from a fear of us suing school?We'd ahve a good case(not least becuase they left a simialr child belonging to afriend alonea a year later with same results and same bolloxy excuse about oh he just fell that didn't match maxillo-facial surgeon's take on the injury at all.....) it mighn't bethat, who knows withno answers?

I won'tlet them just discharge ds3 but am aware that no otehr shild I know gets anything like asmuch SLY (is any) so he has been lucky if you can have SLI and still be lucky. I refuse to stop describing him as having SLI until people can understand what he says,isn;t that a basic of speech after all?

OP posts:
TotalChaos · 08/02/2010 15:37

aaaargh. DS appears (from what I can gather, as I only have his version of events) to have got into trouble for not doing his work on the computer. Now whilst I have a strong suspicion this may be connected with him not understanding the instructions given by teacher, there is of course always the possibility he was pissing about, so cant go in tomorrow all guns steaming. now if DS was under sALT or had been discharged in a more honest way - i.e. he's come on sufficient we are discharging but he still have problems I wouldn't have to worry so much about the possibility of him being penalised for not understanding.....

BethNoireNewNameForPeachy · 09/02/2010 12:54

It's hard isn;t it?

We'veahd a spate of ds3being tired seeming,no attention,increased absences.... schoolsaid he wasnt sleping but started as he got mroe sleep....

ws feeling really criticised tbh....

lecture last night (on TTR now).allabout kids like himwith hypo sensory needs and describing just that!

i've been known towrite deliberately chatty brief e-mails toschool WRT to things like that TC, saying @Oh I heard this happened,I exp[ect it ws just messing about etc but can I just remind you to be aware he has had issues wrtunderstanding so always best to make sure its been reinforced visually (or whatever) before assuming naughtiness' andleaveit at that.

Would that work?

OP posts:
TotalChaos · 09/02/2010 15:29

well I was planning to have a conversation along those lines, but it sort of went tits up:-
turns out there was no particular issue about yesterday on the computer, as most of the class didn't finish their work, but she did think S and his pal were messing around today on the computer. When I said about being concerned about him understanding instructions I got back "oh he understands perfectly well" in a most snotty tone . I feebly reiterated, that S has had language problems, and she softened her tone slightly, saying that he didn't have any issues doing his work, seemed to understand what to do.

Roll on next September is all I can say.

I am feel quite headfucked frankly, as any of the sn mums who have met DS over the last year definitely feel his conversation etc is delayed, yet school want to treat me like a munchausens mummy .

BethNoireNewNameForPeachy · 09/02/2010 16:22

Its amazing how it can play with your mind isn't it? I actual;ly wondered if DS2 had gained full age appropriate language until the SN mums I know were amazed at the idea.

OP posts:
TotalChaos · 09/02/2010 16:25

funnily enough, the one friend of mine who has always been oh he's fine about DS happens to be.... a primary school supply teacher

you'ld think the fact that a near 6 year old can't fully explain what's happened in the school day might be a subtle hint....

BethNoireNewNameForPeachy · 09/02/2010 16:35

ds3 can'teven pronouncehisown namewellenough forpeoplewith no sn experience tomanage fgs PMSL

AS dh says, its all bloody mad

OP posts:
New posts on this thread. Refresh page