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Have any of your children refused to take part in the ADOS?

2 replies

mumhadenough · 28/01/2010 13:08

My ds (7) was supposed to have his yesterday, but he was his usual unco-operative self!

The minute we walked in the building he started being to rude to everyone, refusing to take part, tried to escape, got upset (I calmed him), then locked himself in a cupboard and talked to people using his hand as a puppet (lol), gave up and then he escaped from building. (with me following of course).

Poor wee soul got himself in a right state, wants everyone to "butt out of his life" and "quit interfering". It was good though that everyone got to see him like this as this is how he is at school quite often and also the challenge I face when trying to get him to do something he doesn't necesarilly want to do.

Spoke to the social worker last night who is part of the autism assessment team and I think they're going to take a new tactic with him. They're not to going to attempt to re-do the tests in the usual way, she's going to come to the house the next two Wednesday nights and try to get him to interact with her. From that I assume she will be able to mark up what bits she needs to.

The Psych is going to go back to the school another couple of times and observe again (she saw him behave like this in school last week) and the SALT seems to have everything she needs from our previous meetings.

So apparently we will have a diagnosis on 22nd March. I think they have already made up their mind to be honest and I think its going to be Aspergers and possibly ADHD. She did mention that dependant on the diagnosis they may need to pass him on to another party (which I assume is local children's hospital for meds), he is currently under CAMHS and LAAT (Local Autism Assessment Team), who are working together with the school.

I think, once we get a diagnosis, there is a possibility that he may need to be moved to a specialist school. There are a couple of schools near to us that have Autism Units and to be honest he is sooooooo unhappy at the moment I would rather see him there than how sad he is at his mainstream school (even though they are fabulous with him and try their hardest!). But he has zero friends, is constantly removed from class as he is so disruptive and is just generally a really unhappy wee soul at the moment.

Sorry this is just a complete rabble. I haven't posted on the special needs board very often, so suppose I just needed to get it off my chest and maybe hear of some of your similar experiences and perhaps advice as to what will happen now?

OP posts:
logi · 28/01/2010 18:11

Hi,my son who is 6 did the ADOS test and it the results said "he was not autistic" but the nurse doing the test refered him to an assessment team for longer observations and he was diagnosed with autism.
Our son was only at ms school for 2 weeks and we took him out as he was very distressed.
I found observing my son over longer periods works better as they get to know the child a little better.

mumhadenough · 29/01/2010 00:26

Thanks for your reply Logi, he's been in the system for almost four years now and has had many many observations, hence why I think they already know. This was really just a formality I think.

Is your son now at a "special school" and is he much happier?

Its so hard to make decisions for the best isn't it, especially when its something that will affect their life long term.

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