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PDD Nos

5 replies

herenow · 27/01/2010 08:09

Hi

We have just moved here from abroad and I am having trouble finding help for my 5 year old son. We put him in a Seiner school but I am no longer sure that was the right thing to do. We got a late diagnisis of PDD Nos as no one really spoke English so were unaware of the comunication problems.
We are in Brighton, I know I need to get my son some extra help as he is not getting it in school but I do not know where I can get it and feel like I am running out of time.
Any advise would be very much apriaciated

OP posts:
Peachy · 27/01/2010 08:36

Hiya

PDD_NOS is a really unusual dx here, only know one kid with it- she got it in America

I wonder if people would understand more in the community if you referreed to it as ASD - that covers most offshoots of the dx

Am not an expert on steiner schools,though kmnow their rep on MN.

Does your child have a statement, qualify forDLA, have any therapy plan in palce in the UK?

If youlet me have a bit more info I will try and map out some ideas.

Oh and welcome.Peachy,Mum tods1,10,AS; ds2,almost 9,SEN; ds3, 6.5, Autismwith SLI; ds4,21months and MA in ASD student. And MN addict

Loads of info on here,lots of opeople who can help

chopstheduck · 27/01/2010 10:02

Hi, welcome to mn. My ds has dyspraxia, hypermobility and some sort of autism. He is going to be either diagnosed with autism or pdd-nos.

I'm sure you should be able to access autism support with the pdd-nos dx. Out paed referred us for help with sensory issues, and autism teaching services, and was hoping to get ds on the earlybird scheme.

Do you have a developemental paediatrician for your son yet? I think that would be your first step, and meetings with the senco at school?

jasdox · 27/01/2010 10:36

Hello and welcome,

My ds has a dx of PDD-NOS as we took the 3DI interview (American method) and my paed attached HFA (High functioning autism), I think it did this as this term is recognised in the uk.

Has you seen a pediatrician? it ususally the way to open doors.

Also if you are concerned about the school, I'd start looking at other schools and find out as much as you can, and there attitude to SEN, as this tends to vary a bit.

Maybe speak to parent partnership, the brighton one is: [[http://www.amazebrighton.org.uk/default.asp] parent partnership]

Peachy · 27/01/2010 10:38

Agree about PAed,my friend satrted by getting teh DX confirmed in the UK.

Woulda lso suggest the NationalAutistic Society website as that is fullofreousrcesand they coudl advise you.

2shoes · 27/01/2010 11:44

hello to a new brighton person(thats where I am)
my dd is 14 and has cp.

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