Shoes?

[Fluffypoms]

DD has really hypermobile ankles, her feet are turned in so making it impossible to buy off the shelf shoes.

we have found a couple of pairs in clarks that with a bit of a push i can manage to get her feet in.

trouble is they were £40 each and dont last long as she quickly out grows them.

explained this to physio who basically said tough shit. dd is 1 of 4 so dont have the money to spare ifswim!

sure our old pead said that there were "special" shoes we could look at getting for her? at later date as that was before dd was walking.
anyone know what shoes that might be? or who to ask for them?

tia.

i guess probably piedro boots. ds has them

does your dd not see an orthotist?
Piedro boots are quite expensive to buy new yourself, round about the £100 mark.

DD1 keeps getting referred to physio, but then kicked off the caseload because they say that there isn't a physical problem they can 'fix', just general low tone, ataxia, sensory problems and balance issues.

However, the last time (she has been seen as a 'new case' 3 times in the last 2 years), the physio finally agreed to at least give her some piedro boots to see if they help her. They are on order now.

Having said that, Clarkes' shoes are expensive, and NT kids do wear them & grow out of them fast. I took DDs 1&2 to Clarkes on Wednesday and came away £63 lighter!

One thing that swayed the physio was that she recommended some supportive boots, but I told her (truthfully) that I'd tried to get her boots at Clarkes, and the fitter couldn't get her feet in for love nor money. If you found that mainstream footwear wasn't suitable, at all, it might sway her a bit more than just saying it's too expensive.

Dd2's feet turn inwards, i have found 1 style of clarks that fit her and luckily i found some in the sale so stocked up on the next size (they were 7.00 a pair). Dd2 has just been referred for physio.

Does your dd2 get through shoes quickly? Dd2 seems to wear them out within a month , she had new shoes 2 weeks ago and she has already worn the toes.

My dd has hypermobile joints and mixed muscle tone. She wears 'Babybotte' shoes which are quite expensive but have fantastic ankle support and are really sturdy and well made. They help her a lot with her walking - she also in-toes when she's tired or trying to run. We've never been offered piedro boots by the physio but I think 'Kickers' are supposed to be quite similar?

Meant to add that if you get your dd fitted, try some on in the shop but don't buy them - you can get shoes on ebay or online for a lot less.

If you know what size your DD is ive seen peidros on ebay. DS wears them for hypermobile joints but also with special shaped insoles and a retaining strap that seems to help him keep his foot down in the boot. I know your DD should ideally be specially measured for piedros so i would push the physio as much as possible, but we have used second hand pairs while waiting in the past and they worked just as well. The insoles did make a difference though, in stopping his feet turning inwards. Also if you know what size you are looking for someone on here may be able to send you an outgrown pair for the cost of postage? Has happened before

What size does she take?

Theres a pair of size 10 Piedros on Ebay just now for £5, listed as boys but would be ok for school etc

cgi.ebay.co.uk/BNIB-Boys-Black-Piedro-Boots-Size-28-Special-Needs_W0QQitemZ260542421450QQcmdZViewIte mQQptZUKClothesShoesAccessoriesBoysShoesBoysShoesJN?hash=item3ca989d9ca#ht500wt1182

Ds (9) gets piedros free from the hospital.

DS2 (6yo) had piedro's until he was 5.5yo, then our PCT dropped the funding for anyone over 5yo who didn't need splints. So I now have to find the £100 a time, twice over, as he always has to have one pair of piedro boots, and one pair of the orthosport boots for PE. I'm glad that since they told me that, he hasn't changed size (just going into next size now) so it's given me 7 months to save up the money for them. He's one of 3 and it's just killer how much it costs. I have size 9's and 10's boys black piedro's in the cupboard, but his size 11's he's wearing right now are fucked not really wearable for anyone else. I'm looking for a size 11.5 boys pair now.

thanks everyone.

physio led me to believe that she wouldnt really quilfy to get the pierdos but a few of you have said your dc,s get them for hypermobile joints? only see physio every 3 months.

dd is walking now,but she still has wide based gait and the in toeing. which ive noticed gets worse outside.
she is size 5.5 G with high instep/arch she also claws with her toes.

seeing physio next week so will push about getting dd some shoes.

also ive noticed she high steps when we are outside too but doesnt seem toget anywhere?
anyone dc do this too?

oops logged in under my other name.
fluffypumpkins = fluffypoms

We can't get piedro's anymore from the NHS, which is a shame, because they're the only boots that do super-wide fittings.

I've got a red pair, a bit battered, but the soles aren't worn down, size 28 if that's any good to anyone.

The next best thing I have found is walking boots from Millets, good ankle suppport and very sturdy, and a lot cheaper than piedros at about £30 to £40 quid.

I don't think you can beat the piedros though.

ive got a navy pair size 26 i think hough will check later if any good to anyone?

We have been asked to return used Piedros to the orthotics dept to be re-used for other children who are waiting. Maybe ask your Physio if you can have second-hand ones?

If your physio wont organise Piedros ask if you can borrow a 2nd hand pair - they should have a stock of them somewhere

"also ive noticed she high steps when we are outside too but doesnt seem toget anywhere?"

Do you mean that she starts taking bigger steps but doesnt propel forwards?

interstella71., Yes exactly that.

'also ive noticed she high steps when we are outside too but doesnt seem toget anywhere?
anyone dc do this too? '

My dd used to walk like this when she first started (she has weak trunk muscles). She has a 'good' gait now according to her physio - has just sorted itself out as she's got more used to walking. She also used to clench her toes and again has sorted itself out as walking has become easier.

I would suggest that when she is outside she has to contend with uneven surfaces (pavements, slopes etc) as well as people moving, noise, general distractions that she is having to use more energy to concentrate on her balance (which is harder with hypermobile joints). As she gets stronger she'll prob be able to push forward more.

DD1 does this, I think for the reasons interstella71 mentions.

My DS2 has Piedros for low muscle tone and hypermobility in his ankles and feet, which causes his feet to collapse inward and his toes to curl up when he walks and makes him unsteady. He also has the shaped insoles. We were told by the orthotist that he's eventually move onto regular shoes or boots, but keep on with the insoles, since that's where he needs the support.